Involving Lived Experience in regional efforts to address gambling-related harms: going beyond ‘window dressing’ and ‘tick box exercises’

Journal article

Jenkins, C., Mills, T., Grimes J, Bland C, Reavey, P., Wills, J. and Sykes, S. (2024). Involving Lived Experience in regional efforts to address gambling-related harms: going beyond ‘window dressing’ and ‘tick box exercises’. BMC Public Health. 24, p. 384. https://doi.org/10.21203/rs.3.rs-3658745/v1
AuthorsJenkins, C., Mills, T., Grimes J, Bland C, Reavey, P., Wills, J. and Sykes, S.
Abstract

Background
Lived Experience (LE) involvement has been shown to improve interventions across diverse sectors. Yet LE contributions to public health approaches to address gambling-related harms remain underexplored, despite notable detrimental health and social outcomes linked to gambling. This paper analyses the potential of LE involvement in public health strategy to address gambling-related harms. It focuses on the example of a UK city-region gambling harms reduction intervention that presented multiple opportunities for LE input.

Methods
Three focus groups and 33 semi-structured interviews were conducted to hear from people with and without LE who were involved in the gambling harms reduction intervention, or who had previous experience of LE-informed efforts for addressing gambling-related harms. People without LE provided reflections on the value and contributions of others’ LE to their work. Data analysis combined the Framework Method with themes developed inductively (from people’s accounts) and deductively (from the literature, including grey literature).

Results
Four themes were identified: (1) personal journeys to LE involvement; (2) the value added by LE to interventions for addressing gambling-related harms; (3) emotional impacts on people with LE; and (4) collective LE and diverse lived experiences. Two figures outlining LE involvement specific to gambling harms reduction in the UK, where public health efforts aimed at addressing gambling-related harms coexist with industry-funded programmes, are proposed.

Conclusions
Integrating a range of LE perspectives in a public health approach to gambling harms reduction requires local access to involvement for people with LE via diverse routes that are free from stigma and present people with LE with options in how they can engage and be heard in decision-making, and how they operate in relation to industry influence. Involving LE in gambling harms reduction requires enabling people to develop the affective and critical skills necessary to navigate complex emotional journeys and a challenging commercial and policy environment.

Year2024
JournalBMC Public Health
Journal citation24, p. 384
PublisherBMC
ISSN1471-2458
Digital Object Identifier (DOI)https://doi.org/10.21203/rs.3.rs-3658745/v1
Web address (URL)http://europepmc.org/abstract/PPR/PPR771269
Publication dates
Online05 Feb 2024
Publication process dates
Accepted31 Jan 2024
Deposited26 Feb 2024
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Wills, J and Beighton, C (2019). How parents describe the positive aspects of parenting a child who has intellectual disabilities: a systematic review and narrative synthesis. Journal of Applied Research in Intellectual Disabilities. 32. https://doi.org/10.1111/jar.12617
Shaping alcohol health literacy: a systematic concept analysis and review
Sykes, S, Wills, J, Okan, O and Rowlands, G (2019). Shaping alcohol health literacy: a systematic concept analysis and review. Health Literacy Research and Practice. https://doi.org/10.3928/24748307-20191104-01
‘Never drop without your significant other, cause that way lies ruin’: The boundary work of couples who use MDMA together
Anderson, K, Reavey, P and Boden, Z (2019). ‘Never drop without your significant other, cause that way lies ruin’: The boundary work of couples who use MDMA together. International Journal of Drug Policy. 71, pp. 10-18. https://doi.org/10.1016/j.drugpo.2019.05.004
An Affective (Re)balancing Act? The Liminal Possibilities for Heterosexual Partners on MDMA
Anderson, K, Reavey, P and Boden, Z (2018). An Affective (Re)balancing Act? The Liminal Possibilities for Heterosexual Partners on MDMA. in: Juvonen, T and Kolehmainen, M (ed.) Affective Inequalities in Intimate Relationships London Routledge. pp. 19-33
Systematic review: What works to address obesity in nurses?
Kelly, M. and Wills, J (2018). Systematic review: What works to address obesity in nurses? Occupational Medicine. 68 (4), pp. 228-238. https://doi.org/10.1093/occmed/kqy038
Advancing Complexity Science in Healthcare Research: The Logic of Logic Models
Mills, T., Lawton, R. and Sheard, L. (2018). Advancing Complexity Science in Healthcare Research: The Logic of Logic Models. Health Services Research UK.
Comparison of effectiveness and cost-effectiveness of an intensive community supported discharge service versus treatment as usual for adolescents with psychiatric emergencies: a randomised controlled trial.
Ougrin, D, Corrigall, R, Poole, J, Zundel, T, Sarhane, M, Slater, V, Stahl, D, Reavey, P, Byford, S, Heslin, M, Ivens, J, Crommelin, M, Abdulla, Z, Hayes, D, Middleton, K, Nnadi, B and Taylor, E (2018). Comparison of effectiveness and cost-effectiveness of an intensive community supported discharge service versus treatment as usual for adolescents with psychiatric emergencies: a randomised controlled trial. Lancet Psychiatry. 5 (6), pp. 477-485. https://doi.org/10.1016/S2215-0366(18)30129-9
Facing the void: Recollections of embodying fear in the space of childhood homes
Reavey, P, Del Busso, L, Mcgrath, LM, Kanyeredzi, A and Guest, C (2018). Facing the void: Recollections of embodying fear in the space of childhood homes. Emotion, Space and Society. 28 (3), pp. 29-41. https://doi.org/10.1016/j.emospa.2018.06.004
Embodiment and place in autobiographical remembering: a relational-material approach
Reavey, P and Brown, SD (2018). Embodiment and place in autobiographical remembering: a relational-material approach. Journal of Consciousness Studies. 25 (7-8), pp. 200-224.
Nurses as role models in health promotion: piloting the acceptability of a social marketing campaign.
Wills, J, Kelly, M and Frings, D (2018). Nurses as role models in health promotion: piloting the acceptability of a social marketing campaign. Journal of Advanced Nursing. 75 (2), pp. 423-431. https://doi.org/10.1111/jan.13874
Agents and spectres: Life-space on a medium secure forensic psychiatric unit
Reavey, P, Brown, SD, McGrath, L, Tucker, I and Kanyeredzi, A (2018). Agents and spectres: Life-space on a medium secure forensic psychiatric unit. Social Science and Medicine. 220, pp. 273-282. https://doi.org/10.1016/j.socscimed.2018.11.012
Challenges and opportunities in building critical health literacy
Sykes, SM and Wills, JD (2018). Challenges and opportunities in building critical health literacy. Global Health Promotion. 25 (4), p. 2018. https://doi.org/10.1177/1757975918789352
Living ‘in between’ outside and inside: The forensic psychiatric unit as an impermanent assemblage
Reavey, P, Tucker, I, Brown, SD, McGrath, L and Kanyeredzi, A (2018). Living ‘in between’ outside and inside: The forensic psychiatric unit as an impermanent assemblage. Health and Place. 55, pp. 29-36. https://doi.org/10.1016/j.healthplace.2018.10.009
Contextualising Autobiographical Remembering: An expanded view of memory
Brown, SD and Reavey, P (2017). Contextualising Autobiographical Remembering: An expanded view of memory. in: Meade, M, Harris, C, Van Bergen, P, Sutton, J and Barnier, A (ed.) Collaborative Remembering: Theories, Research, and Applications Oxford Oxford University Press (OUP). pp. 197-215
Remembering 7/7: the collective shaping of memories of the London bombings
Brown, SD, Allen, MA and Reavey, P (2016). Remembering 7/7: the collective shaping of memories of the London bombings. in: Tota, AL and Hagen, T (ed.) Routledge International Handbook of Memory Studies Oxford University Press (OUP).
Institutional forgetting/forgetting institutions: Space and memory in secure forensic psychiatric care
Brown, SD and Reavey, P (2016). Institutional forgetting/forgetting institutions: Space and memory in secure forensic psychiatric care. in: Institutions Inc. Palgrave Macmillan. pp. 7-29
Exploring the Economic Dimensions of Complexity: A Post-Positivist Evaluation of Diabetes Policy and Governance
Mills, T. (2017). Exploring the Economic Dimensions of Complexity: A Post-Positivist Evaluation of Diabetes Policy and Governance. "We Need to Talk About Complexity": Oxford University Talks. Green Templeton College, University of Oxford 13 - 14 Jun 2017
Scenic memory: Experience through time–space
Reavey, P (2017). Scenic memory: Experience through time–space. Memory Studies. 10 (2), pp. 107-111. https://doi.org/10.1177/1750698016683844
Should nurses be role models for healthy lifestyles? Results from a modified Delphi study.
Kelly, M, Wills, JD, Jester, R and Speller, V (2017). Should nurses be role models for healthy lifestyles? Results from a modified Delphi study. Journal of Advanced Nursing. 73 (3), pp. 665-678. https://doi.org/10.1111/jan.13173
Dark Organizational Theory
Reavey, P and Brown, SD (2017). Dark Organizational Theory. Journal of Cultural Economy. 10 (3), pp. 280-295. https://doi.org/10.1080/17530350.2017.1298533
False Memories and Real Epistemic Problems
Reavey, P and Brown, SD (2017). False Memories and Real Epistemic Problems. Culture and Psychology. 23 (2). https://doi.org/10.1177/1354067X17695764
The health literacy dyad: the contribution of future GPs in England
Wills, JD, Groene, O, Rowlands, G and Rudd, R (2017). The health literacy dyad: the contribution of future GPs in England. Education for primary care : an official publication of the Association of Course Organisers, National Association of GP Tutors, World Organisation of Family Doctors. 28 (5), pp. 274-281. https://doi.org/10.1080/14739879.2017.1327332
The ward as emotional ecology: Adolescent experiences of managing mental health and distress in psychiatric inpatient settings.
Reavey, P, Poole, J, Corrigall, R, Zundel, T, Byford, D, Sarhane, S, Taylor, M, Taylor, E, Ivens, J and Ougrin, D (2017). The ward as emotional ecology: Adolescent experiences of managing mental health and distress in psychiatric inpatient settings. Health and Place. 46, pp. 210-218. https://doi.org/10.1016/j.healthplace.2017.05.008
The Role of Community Development in Building Critical Health Literacy
Sykes, SM, Wills, JD and Popple, K (2017). The Role of Community Development in Building Critical Health Literacy. Community Development Journal. 53 (4), pp. 751-767. https://doi.org/10.1093/cdj/bsx019
Investigating the attitudes of nurses who are obese
Wills, JD and Kelly, M (2017). Investigating the attitudes of nurses who are obese. Nursing Standard. 31 (46), pp. 42-48. https://doi.org/10.7748/ns.2017.e10645
Do nurses' personal health behaviours impact on their health promotion practice: a systematic review
Kelly, M, Wills, JD and Sykes, SM (2017). Do nurses' personal health behaviours impact on their health promotion practice: a systematic review. International Journal of Nursing Studies. 76, pp. 62-77. https://doi.org/10.1016/j.ijnurstu.2017.08.008
Enhancing care transitions for older people through interprofessional simulation: a mixed method evaluation
Sykes, SM, Baillie, LJ, Thomas, B, Scotter, J and Martin, F (2017). Enhancing care transitions for older people through interprofessional simulation: a mixed method evaluation. International Journal of Integrated Care. 17 (6), pp. 1-13. https://doi.org/10.5334/ijic.3055
Obesity prevalence among healthcare professionals in England: a cross-sectional study using the health survey for England
Kyle, RG, Wills, JD, Mahoney, C, Hoyle, L, Kelly, M and Atherton, IM (2017). Obesity prevalence among healthcare professionals in England: a cross-sectional study using the health survey for England. BMJ Open. 7 (12). https://doi.org/10.1136/bmjopen-2017-018498
Examining professionals' perspectives on sexuality for service users of a forensic psychiatry unit
Dein, KE, Williams, PS, Volkonskaia, I, Kanyeredzi, A, Reavey, P and Leavey, G (2016). Examining professionals' perspectives on sexuality for service users of a forensic psychiatry unit. International Journal of Law and Psychiatry. 44, pp. 15-23. https://doi.org/10.1016/j.ijlp.2015.08.027
"Zip me up, and cool me down": Molar narratives and molecular intensities in 'helicopter' mental health services.
McGrath, L and Reavey, P (2016). "Zip me up, and cool me down": Molar narratives and molecular intensities in 'helicopter' mental health services. Health and Place. 38, pp. 61-69. https://doi.org/10.1016/j.healthplace.2015.12.005
Healthy universities: an example of a whole-system health-promoting setting
Newton, J, Dooris, M and Wills, JD (2016). Healthy universities: an example of a whole-system health-promoting setting. Global Health Promotion. 23 (Supp 1), pp. 57 - 65. https://doi.org/10.1177/1757975915601037
Using community development to build critical health literacy
Sykes, SM, Wills, JD and Crichton, N (2016). Using community development to build critical health literacy. 4th Health Literacy Conference - Health Literacy. Glasgow 18 Mar 2016
Legal professionals and witness statements from people with a suspected mental health diagnosis.
Reavey, P, Wilcock, R, Brown, SD, Batty, R and Fuller, S (2016). Legal professionals and witness statements from people with a suspected mental health diagnosis. International Journal of Law and Psychiatry. 46, pp. 94-102. https://doi.org/10.1016/j.ijlp.2016.02.040
Good to Go: Enhancing care transfers from hospital to home for older people with complex needs.
Thomas, B, Baillie, LJ, Martin, F, Sykes, SM and Scotter, J (2016). Good to Go: Enhancing care transfers from hospital to home for older people with complex needs. 16th International Conference on Integrated Care. Barcelona, Spain 23 - 25 May 2016
Enhancing care transfers from hospital to home for older people with complex needs
Baillie, LJ, Thomas, B, Martin, F, Sykes, SM and Scotter, J (2016). Enhancing care transfers from hospital to home for older people with complex needs. 16th International Conference on Integrated Care. Barcelona, Spain 23 - 25 May 2016 London South Bank University.
Troubled, Troubling or in Trouble: The Stories of ‘Troubled Families’
Wills, JD, Whittaker, AJ, Rickard, W and Felix, C (2016). Troubled, Troubling or in Trouble: The Stories of ‘Troubled Families’. British Journal of Social Work. 47 (4), pp. 989-1006. https://doi.org/10.1093/bjsw/bcw061
Are parents identifying positive aspects to parenting their child with an intellectual disability or are they just coping? A qualitative exploration
Beighton, C and Wills, JD (2016). Are parents identifying positive aspects to parenting their child with an intellectual disability or are they just coping? A qualitative exploration. Journal of Intellectual Disabilities. https://doi.org/10.1177/1744629516656073
How is rising obesity tackled in China and Europe?
Wills, JD and Liu, T (2016). How is rising obesity tackled in China and Europe? European Journal of Oriental Medicine. 8 (3).
What works to encourage student nurses to adopt healthier lifestyles? Findings from an intervention study.
Wills, JD and Kelly, M (2016). What works to encourage student nurses to adopt healthier lifestyles? Findings from an intervention study. Nurse Education Today. 48, pp. 180-184. https://doi.org/10.1016/j.nedt.2016.10.011
Losing Control Again? Power and the quality of working life
Mills, T. and Overell, S. (2010). Losing Control Again? Power and the quality of working life. The Work Foundation.