From hierarchies of exclusion to participant-led inclusion: A qualitative research agenda for health information literacy

Journal article


Hicks, A., Grant, V. and Jenkins, C. (2024). From hierarchies of exclusion to participant-led inclusion: A qualitative research agenda for health information literacy. Library & Information Science Research. 46 (2). https://doi.org/10.1016/j.lisr.2024.101295
AuthorsHicks, A., Grant, V. and Jenkins, C.
Abstract

Health information literacy links people to the information sources and ways of knowing that they need to make informed decisions about wellbeing. Qualitative research methods provide a powerful way to centre how people use information to learn about health as well as the conditions and social structures that enable and constrain information practice. This approach challenges health information literacy's more traditional focus on the measurement of normative, approved skills. Collaborative enquiry analysis of three recent studies into critical health literacy and children, chronic illness (irritable bowel syndrome) and vaccine hesitancy establishes a research agenda for qualitative health information literacy research. Producing four themes, including positioning information settings as health literate organisations, literacies for life, scaling up infrastructure and empowerment, the research agenda outlines directions for future theoretical, practical, and methodological health information literacy research.

KeywordsHealth information literacy; Health literacy; Qualitative methods; Participatory methods
Year2024
JournalLibrary & Information Science Research
Journal citation46 (2)
PublisherElsevier
ISSN1873-1848
Digital Object Identifier (DOI)https://doi.org/10.1016/j.lisr.2024.101295
Web address (URL)https://www.sciencedirect.com/science/article/pii/S0740818824000161
Publication dates
Online02 May 2024
Publication process dates
Accepted13 Apr 2024
Deposited04 Jun 2024
Publisher's version
License
File Access Level
Open
Permalink -

https://openresearch.lsbu.ac.uk/item/971v1

  • 24
    total views
  • 24
    total downloads
  • 0
    views this month
  • 0
    downloads this month

Export as

Related outputs

Lived Experience contributions to local services for addressing gambling harms
Jenkins, C. (2024). Lived Experience contributions to local services for addressing gambling harms.
Involving Lived Experience in regional efforts to address gambling-related harms: going beyond ‘window dressing’ and ‘tick box exercises’
Jenkins, C., Mills, T., Grimes J, Bland C, Reavey, P., Wills, J. and Sykes, S. (2024). Involving Lived Experience in regional efforts to address gambling-related harms: going beyond ‘window dressing’ and ‘tick box exercises’. BMC Public Health. 24, p. 384. https://doi.org/10.21203/rs.3.rs-3658745/v1
The Self-Care Observatory: Health Literacy
Jenkins, C. (2023). The Self-Care Observatory: Health Literacy. The Self-Care Observatory.
Evaluation of a city-region initiative to galvanise a community response to gambling-related harms
Jenkins, C and Mills, T (2023). Evaluation of a city-region initiative to galvanise a community response to gambling-related harms. European Journal of Public Health. 33 (Supplement_2). https://doi.org/10.1093/eurpub/ckad160.676
Critical health literacy: conceptualization and settings-based development
Sykes, S and Jenkins, C L (2023). Critical health literacy: conceptualization and settings-based development. European Journal of Public Health. 33 (Supplement_2). https://doi.org/10.1093/eurpub/ckad160.047
Harnessing lived experience in a community-based intervention to address gambling-related harms
Jenkins, C, Mills, T, Reavey, P, Moss, A, Sykes, S, Wills, J and Grimes, J (2023). Harnessing lived experience in a community-based intervention to address gambling-related harms. European Journal of Public Health. 33 (Supplement_2). https://doi.org/10.1093/eurpub/ckad160.1654
What works in advocating for food advertising policy change across an english region - a realist evaluation
Sykes, S., Watkins, M., Bond, M., Jenkins, C. and Wills, J. (2023). What works in advocating for food advertising policy change across an english region - a realist evaluation. BMC Public Health. 23 (1), p. 1896. https://doi.org/10.1186/s12889-023-16829-8
Co-producing principles to guide health research: an illustrative case study from an eating disorder research clinic
Brooks, C., Kafle, E., Butt, N., Chawner, D., Day, A., Elsby-Pearson, C., Elson, E., Hammond, J., Herbert, P., Jenkins, C., Johnson, Z., Keith-Roach, S., Papasileka, E., Reeves, S., Stewart, N., Gilbert, N. and Startup, H. (2023). Co-producing principles to guide health research: an illustrative case study from an eating disorder research clinic. Research Involvement and Engagement. 9 (84). https://doi.org/10.1186/s40900-023-00460-3
Settings for the development of health literacy: A conceptual review
Jenkins, C., Wills, J. and Sykes, S. (2023). Settings for the development of health literacy: A conceptual review. Frontiers in Public Health. 11, p. 1105640. https://doi.org/10.3389/fpubh.2023.1105640
Digital Health Intervention Design and Deployment for Engaging Demographic Groups Likely to Be Affected by the Digital Divide: Protocol for a Systematic Scoping Review (Preprint)
Jenkins, C., Imran, S., Mahmood, A., Bradbury, K., Murray, E., Stevenson, F. and Hamilton, F. (2022). Digital Health Intervention Design and Deployment for Engaging Demographic Groups Likely to Be Affected by the Digital Divide: Protocol for a Systematic Scoping Review (Preprint). JMIR Research Protocols. 11 (3). https://doi.org/10.2196/32538
Involving Children in Health Literacy Research
Jenkins, C., Wills, J. and Sykes, S. (2022). Involving Children in Health Literacy Research. Children. 10 (1), p. 23. https://doi.org/10.3390/children10010023
A Student Perspective on Learning and Doing Settings-Based Health Promotion in the Era of TikTok
Jenkins, C. (2022). A Student Perspective on Learning and Doing Settings-Based Health Promotion in the Era of TikTok. in: International Handbook of Teaching and Learning in Health Promotion
Public Libraries as Supportive Environments for Children’s Development of Critical Health Literacy
Jenkins, C., Sykes, S. and Wills, J. (2022). Public Libraries as Supportive Environments for Children’s Development of Critical Health Literacy. International Journal of Environmental Research and Public Health. 19 (19). https://doi.org/10.3390/ijerph191911896