Are parents identifying positive aspects to parenting their child with an intellectual disability or are they just coping? A qualitative exploration

Journal article


Beighton, C and Wills, JD (2016). Are parents identifying positive aspects to parenting their child with an intellectual disability or are they just coping? A qualitative exploration. Journal of Intellectual Disabilities.
AuthorsBeighton, C and Wills, JD
Abstract

Although acknowledging the stress of raising their child with intellectual disabilities, parents also report that their child has brought about many positive changes for themselves and family. This study firstly reports what parents perceive to be a positive aspect of parenting their child as currently what constitutes a ‘positive’ is unclear. Seven key themes were identified; an increased sense of personal strength and confidence, changed priorities, greater appreciation of life, pleasure in the child’s accomplishments, increased faith/spirituality, more meaningful relationships and the positive effect that the child has on the wider community. Secondly, interpretive examination of the themes reveals that the positive aspects identified consist mostly of meaning-focused coping strategies. These enable parents to adapt successfully with the stressful experiences of raising their child and therefore could be amenable to meaning-focused therapeutic interventions for parents with newly diagnosed children or for those unable to identify any positive aspects of parenting their child.

Year2016
JournalJournal of Intellectual Disabilities
PublisherSAGE Publications (UK and US)
ISSN1744-6309
Digital Object Identifier (DOI)doi:10.1177/1744629516656073
Publication dates
Print26 Jun 2016
Publication process dates
Deposited19 Dec 2016
Accepted30 May 2016
Accepted author manuscript
License
CC BY 4.0
Page range1-21
Permalink -

https://openresearch.lsbu.ac.uk/item/87386

  • 2
    total views
  • 27
    total downloads
  • 1
    views this month
  • 7
    downloads this month

Related outputs

IUHPE Position statement on health literacy: a practical vision for a health literate world
Bröder, J, Chang, P, Kickbusch, I, Levin-Zamir, D, McElhinney, E, Nutbeam, D, Okan, O, Osborne, R, Pelikan, J, Rootman, I, Rowlands, G, Nunes-Saboga, L, Simmons, R, Sørensen, K, Van den Broucke, S, Velardo, S, Wills, J and International Union for Health Promotion and Education (2018). IUHPE Position statement on health literacy: a practical vision for a health literate world. Montreal, Canada International Union of Health Promotion and Education. doi:10.1177/1757975918814421
How parents describe the positive aspects of parenting a child who has intellectual disabilities: a systematic review and narrative synthesis
Wills, J and Beighton, C (2019). How parents describe the positive aspects of parenting a child who has intellectual disabilities: a systematic review and narrative synthesis. Journal of Applied Research in Intellectual Disabilities.
Shaping alcohol health literacy: a systematic concept analysis and review
Sykes, S, Wills, J, Okan, O and Rowlands, G (2019). Shaping alcohol health literacy: a systematic concept analysis and review. Health Literacy Research and Practice.
Critical health literacy for the marginalised: Empirical findings
Sykes, S. and Wills, J. (2019). Critical health literacy for the marginalised: Empirical findings. in: Orkan, O., Ullrich, B., Levin-Zamir, D., Pinheiro, P. and Sorensen, K. (ed.) International Handbook of Health Literacy: Research, Practice and Policy across the Life-Span Bristol
Gender and health literacy: men’s health beliefs and behavior in Trinidad
Wills, J., Sykes, S., Hardy, S., Joshua, K., Moorley, C. and Ocho, O (2019). Gender and health literacy: men’s health beliefs and behavior in Trinidad. Health Promotion International.
Nurses as role models in health promotion: piloting the acceptability of a social marketing campaign.
Wills, J, Kelly, M and Frings, D (2018). Nurses as role models in health promotion: piloting the acceptability of a social marketing campaign. Journal of Advanced Nursing. 75 (2), pp. 423-431.
Challenges and opportunities in building critical health literacy
Sykes, SM and Wills, JD (2018). Challenges and opportunities in building critical health literacy. Global Health Promotion.
Systematic review: What works to address obesity in nurses
Wills, JD and Kelly, M (2018). Systematic review: What works to address obesity in nurses. Occupational Medicine. 68 (4), pp. 228-238.
Do nurses' personal health behaviours impact on their health promotion practice: a systematic review
Kelly, M, Wills, JD and Sykes, SM (2017). Do nurses' personal health behaviours impact on their health promotion practice: a systematic review. International Journal of Nursing Studies. 76, pp. 62-77.
Obesity prevalence among healthcare professionals in England: a cross-sectional study using the health survey for England
Kyle, RG, Wills, JD, Mahoney, C, Hoyle, L, Kelly, M and Atherton, IM (2017). Obesity prevalence among healthcare professionals in England: a cross-sectional study using the health survey for England. BMJ Open. 7 (12).
Investigating the attitudes of nurses who are obese.
Wills, JD and Kelly, M (2017). Investigating the attitudes of nurses who are obese. Nursing Standard. 31 (46), pp. 42-48.
The health literacy dyad: the contribution of future GPs in England
Wills, JD, Groene, O, Rowlands, G and Rudd, R (2017). The health literacy dyad: the contribution of future GPs in England. Education for primary care : an official publication of the Association of Course Organisers, National Association of GP Tutors, World Organisation of Family Doctors.
The Role of Community Development in Building Critical Health Literacy
Sykes, SM, Wills, JD and Popple, K (2017). The Role of Community Development in Building Critical Health Literacy. Community Development Journal.
What works to encourage student nurses to adopt healthier lifestyles? Findings from an intervention study.
Wills, JD and Kelly, M (2016). What works to encourage student nurses to adopt healthier lifestyles? Findings from an intervention study. Nurse Education Today. 48, pp. 180-184.
Should nurses be role models for healthy lifestyles? Results from a modified Delphi study.
Kelly, M, Wills, JD, Jester, R and Speller, V (2017). Should nurses be role models for healthy lifestyles? Results from a modified Delphi study. Journal of Advanced Nursing. 73 (3), pp. 665-678.
Using community development to build critical health literacy
Sykes, SM, Wills, JD and Crichton, N (2016). Using community development to build critical health literacy. 4th Health Literacy Conference - Health Literacy. Glasgow 18 Mar 2016 London South Bank University.
Troubled, Troubling or in Trouble: The Stories of ‘Troubled Families’
Wills, JD, Whittaker, AJ, Rickard, W and Felix, C (2016). Troubled, Troubling or in Trouble: The Stories of ‘Troubled Families’. British Journal of Social Work.
Healthy universities: an example of a whole-system health-promoting setting
Newton, J, Dooris, M and Wills, JD (2016). Healthy universities: an example of a whole-system health-promoting setting. Global Health Promotion. 23 (Supp 1), pp. 57 - 65.
How is rising obesity tackled in China and Europe?
Wills, JD and Liu, T (2016). How is rising obesity tackled in China and Europe? European Journal of Oriental Medicine. 8 (3).