Personal information documents for people with dementia: healthcare staff’s perceptions and experiences

Journal article


Thomas, NM and Baillie, LJ (2018). Personal information documents for people with dementia: healthcare staff’s perceptions and experiences. Dementia.
AuthorsThomas, NM and Baillie, LJ
Abstract

Person-centred care is internationally recognised as best practice for the care of people with dementia. Personal information documents for people with dementia are proposed as a way to support person-centred care in healthcare settings. However, there is little research about how they are used in practice. The aim of this study was to analyse healthcare staff’s perceptions and experiences of using personal information documents, mainly Alzheimer’s Society’s ‘This is me’, for people with dementia in healthcare settings. The method comprised a secondary thematic analysis of data from a qualitative study, of how a dementia awareness initiative affected care for people with dementia in one healthcare organisation. The data were collected through 12 focus groups (n=58 participants) and 1 individual interview, conducted with a range of healthcare staff, both clinical and non-clinical. There are four themes presented: Understanding the rationale for personal information documents; Completing personal information documents; Location for personal information documents and transfer between settings; Impact of personal information documents in practice. The findings illuminated how healthcare staff use personal information documents in practice in ways that support person-centred care. Practical issues about the use of personal information documents were revealed and these may affect the optimal use of the documents in practice. The study indicated the need to complete personal information documents at an early stage following diagnosis of dementia, and the importance of embedding their use across care settings, to support communication and integrated care

KeywordsDementia, person-centred care, personal information documents, communication, healthcare, care transitions; 1103 Clinical Sciences; 1110 Nursing; 1702 Cognitive Science; Geriatrics
Year2018
JournalDementia
PublisherSAGE Publications
ISSN1471-3012
Digital Object Identifier (DOI)doi:10.1177/1471301218778907
Publication dates
Print06 Jun 2018
Publication process dates
Deposited02 May 2018
Accepted29 Apr 2018
Accepted author manuscript
License
CC BY 4.0
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https://openresearch.lsbu.ac.uk/item/86qqq

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