Decision‐making experiences of young adults with long‐term conditions
Ofori‐Ansah, S., Evans, M., Jones, J. and Thomas, N. (2021). Decision‐making experiences of young adults with long‐term conditions. Journal of Renal Care. https://doi.org/10.1111/jorc.12367
|Authors||Ofori‐Ansah, S., Evans, M., Jones, J. and Thomas, N.|
Background: Young adults with long-term conditions can struggle to accept their diagnosis and can become overwhelmed with managing their condition. Sub-optimal transfer from paediatric to adult services with a resultant disengagement with the service, can result in less involvement in care and decision-making. Shared decision-making can improve involvement in health decisions and increase satisfaction with treatment/therapy and care.
Objectives: An integrative literature review was conducted to explore and understand young adults’ experiences of decision-making in healthcare.
Design: An integrative literature review.
Findings: Thirteen primary research papers met the inclusion criteria. Four main themes were identified: (1) Information delivery and communication; (2) Participation in decision-making; (3) Social factors influencing decision-making; and (4) Emotional impact of decision-making.
Conclusions: Young adults with long-term conditions have specific decision-making needs which can impact on their emotional health. Research with a specific focus on young adults’ experiences of decision-making in healthcare is needed.
|Keywords||Nephrology; Advanced and Specialised Nursing|
|Journal||Journal of Renal Care|
|Digital Object Identifier (DOI)||https://doi.org/10.1111/jorc.12367|
|Funder/Client||London South Bank University|
|Online||04 Mar 2021|
|Publication process dates|
|Accepted||22 Jan 2021|
|Deposited||02 Feb 2021|
|Accepted author manuscript|
File Access Level
This is the peer reviewed version of the following article: Ofori-Ansah, S. et al (2021) Decision-making experiences of young adults with long-term conditions, Journal of Renal Care, which will be published in final form at https://onlinelibrary.wiley.com/doi/abs/10.1111/jorc.12367 . This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Use of Self-Archived Versions.
Accepted author manuscript
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