Decision‐making experiences of young adults with long‐term conditions
Ofori-Ansah, S., Evans, M., Jones, J. and Thomas, N. (2021). Decision‐making experiences of young adults with long‐term conditions. Journal of Renal Care. 48 (1), pp. 24-40. https://doi.org/10.1111/jorc.12367
|Authors||Ofori-Ansah, S., Evans, M., Jones, J. and Thomas, N.|
Background: Young adults with long-term conditions can struggle to accept their diagnosis and can become overwhelmed with managing their condition. Sub-optimal transfer from paediatric to adult services with a resultant disengagement with the service, can result in less involvement in care and decision-making. Shared decision-making can improve involvement in health decisions and increase satisfaction with treatment/therapy and care.
Objectives: An integrative literature review was conducted to explore and understand young adults’ experiences of decision-making in healthcare.
Design: An integrative literature review.
Findings: Thirteen primary research papers met the inclusion criteria. Four main themes were identified: (1) Information delivery and communication; (2) Participation in decision-making; (3) Social factors influencing decision-making; and (4) Emotional impact of decision-making.
Conclusions: Young adults with long-term conditions have specific decision-making needs which can impact on their emotional health. Research with a specific focus on young adults’ experiences of decision-making in healthcare is needed.
|Keywords||Nephrology; Advanced and Specialised Nursing|
|Journal||Journal of Renal Care|
|Journal citation||48 (1), pp. 24-40|
|Digital Object Identifier (DOI)||https://doi.org/10.1111/jorc.12367|
|Funder/Client||London South Bank University|
|Online||04 Mar 2021|
|Publication process dates|
|Accepted||22 Jan 2021|
|Deposited||02 Feb 2021|
|Accepted author manuscript|
File Access Level
This is the peer reviewed version of the following article: Ofori-Ansah, S. et al (2021) Decision-making experiences of young adults with long-term conditions, Journal of Renal Care, which will be published in final form at https://onlinelibrary.wiley.com/doi/abs/10.1111/jorc.12367 . This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Use of Self-Archived Versions.
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