Innovative education for people with chronic kidney disease: an evaluation study

Journal article

Rainey, H., Hussain, S. and Thomas, N. (2020). Innovative education for people with chronic kidney disease: an evaluation study. Journal of Renal Care. 46 (4), pp. 197-205. https://doi.org/10.1111/jorc.12325
AuthorsRainey, H., Hussain, S. and Thomas, N.
Abstract

Background
An innovative Community Kidney Service has been running since 2016 in four health regions in East London, UK. This paper focuses on the patient education (self-management) programme within the service.

Objective
To understand the experiences of people with stage 1 – 3b chronic kidney disease invited to individual or group education sessions. To assess the usefulness of the programme’s educational resources to primary care nurses.

Design
A mixed-method project. A steering group involving patients shaped both survey and interview questions.

Participants
Paper surveys (n=266) were sent to patients 7-19 months after they had attended. Semi-structured interviews were undertaken with patients who returned the survey and indicated they were willing to be interviewed (n=9). Survey links were sent electronically to primary care nurses.

Results
54 surveys were returned from patients. The education session increased self-reported knowledge about kidney disease and two thirds of patients reported making lifestyle changes. Analysis of interview data identified recognition of kidney disease, motivation to change and reliance on ‘experts’ as key themes. Surveys were returned from 21 nurses. Most were aware of the community kidney service but only one third had used the education resources with their patients.

Conclusions
Secondary care nursing involvement in primary care-based education for people with kidney disease is rare in the UK and internationally. This educational intervention, developed with patients, supports people to make changes that have the potential to reduce progression of kidney disease and our findings have significance for other teams working in chronic kidney disease management.

KeywordsNephrology; Advanced and Specialised Nursing
Year2020
JournalJournal of Renal Care
Journal citation46 (4), pp. 197-205
PublisherWiley
ISSN1755-6678
1755-6686
Digital Object Identifier (DOI)https://doi.org/10.1111/jorc.12325
Funder/ClientRoyal London Hospital Kidney Patients Association
Publication dates
Print18 Mar 2020
Online18 Mar 2020
Publication process dates
Accepted14 Feb 2020
Deposited22 Feb 2020
Accepted author manuscript
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Open
Accepted author manuscript
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File Access Level
Open
Additional information

This is the peer reviewed version of the following article: Rainet et al. (2020)Innovative education for people with chronic kidney disease: an evaluation study, which will be published in final form at https://onlinelibrary.wiley.com/journal/17556686. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Use of Self-Archived Versions.

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