Young adults' experiences of dialysis or kidney transplant decision-making

Young adults with kidney failure experience disruptions in their education, growth development, building relationships and face employment problems during the journey of the disease (Murray et al., 2014). Once their kidneys fail, they need to make a choice about which dialysis treatment to have or whether they prefer the option of kidney transplant.
So, they have to work with their health care professionals to make decisions to select their preferred dialysis or kidney transplant choice. This is known as shared decision-making.
The three-talk model of shared decision making shown on the screen is used as a guide by health care professionals to encourage discussions of treatment options with patients during the shared decision-making process (Elwyn et al., 2018).

A recent report by the renal registry highlighted that over 50% of young adults with kidney failure started haemodialysis as their first treatment option and less of them (14.1%) received a kidney transplant, although kidney transplantation is recommended as the best treatment (NICE, 2014).

Evidence suggests that among adults with kidney failure, not all patients receive timely information on kidney failure treatment options to enable them share in the decision-making or make an informed choice, which falls short of the recommended guidelines.

It matters because little is known about young adults with kidney failure experiences of dialysis or kidney transplant decision-making and how the decision to select a dialysis or kidney transplant choice may have impacted on their psychosocial and mental well-being.

This is where my study plays an important role. Our involvement group who have dialysis and kidney transplant experiences as children and young adults, suggested that the study should focus on the impact of decision-making on the psychosocial and mental well-being of young adults as it was a neglected area and their views incorporated.

My study will explore young adults’ experiences of decision-making to select a dialysis or kidney transplant choice. It will examine the impact of dialysis or kidney transplant decision-making on young adults psychosocial and mental well-being. Lastly it will seek to understand how young adults can be better supported during the decision-making process to enhance their coping abilities and participation in the decision-making process.