Anti‐ableist language is fully compatible with high‐quality autism research: Response to Singer et al. (2023)

Journal article


Natri, Heini M., Abubakare, Oluwatobi, Asasumasu, Kassiane, Basargekar, Abha, Beaud, Flavien, Botha, Monique, Bottema‐Beutel, Kristen, Brea, Maria Rosa, Brown, Lydia X. Z., Burr, Daisy A., Cobbaert, Laurence, Dabbs, C., Denome, Donnie, Rosa, Shannon Des Roches, Doherty, M., Edwards, Beth, Edwards, Chris, Liszk, Síle Ekaterin, Elise, Freya, Fletcher‐Watson, Sue, Flower, Rebecca L., Fuller, Stephanie, Gassner, Dena, Onaiwu, M., Good, Judith, Grant, Aimee, Haddix, Vicki L., Heraty, Síofra, Hundt, Andrew, Kapp, Steven K., Keates, Nathan, Kulshan, Trayle, Lampi, Andrew J., Latimer, Oswin, Leadbitter, Kathy, Tidd, Jennifer Litton, Manalili, M., Martin, Menelly, Millichamp, Anna, Morton, Hannah, Nair, Vishnu, Pavlopoulou, Georgia, Pearson, A., Pellicano, Liz, Porter, H., Poulsen, Rebecca, Robertson, Zoe S., Rodriguez, Kayla, Roux, A., Russell, Mary, Ryan, J., Sasson, N., Grier, Holly Smith, Somerville, Mark, Sorensen, Cole, Stockwell, Kayden M., Szymanski, Tauna, Thompson‐Hodgetts, Sandy, van Driel, Martine, VanUitert, Victoria, Waldock, Krysia, Walker, Nick, Watts, Courtney, Williams, Zachary, Woods, R., Yu, Betty, Zadow, Meghan, Zimmerman, Jordyn and Zisk, Alyssa Hillary (2023). Anti‐ableist language is fully compatible with high‐quality autism research: Response to Singer et al. (2023). Autism research : official journal of the International Society for Autism Research. 16 (4), pp. 673-676. https://doi.org/10.1002/aur.2928
AuthorsNatri, Heini M., Abubakare, Oluwatobi, Asasumasu, Kassiane, Basargekar, Abha, Beaud, Flavien, Botha, Monique, Bottema‐Beutel, Kristen, Brea, Maria Rosa, Brown, Lydia X. Z., Burr, Daisy A., Cobbaert, Laurence, Dabbs, C., Denome, Donnie, Rosa, Shannon Des Roches, Doherty, M., Edwards, Beth, Edwards, Chris, Liszk, Síle Ekaterin, Elise, Freya, Fletcher‐Watson, Sue, Flower, Rebecca L., Fuller, Stephanie, Gassner, Dena, Onaiwu, M., Good, Judith, Grant, Aimee, Haddix, Vicki L., Heraty, Síofra, Hundt, Andrew, Kapp, Steven K., Keates, Nathan, Kulshan, Trayle, Lampi, Andrew J., Latimer, Oswin, Leadbitter, Kathy, Tidd, Jennifer Litton, Manalili, M., Martin, Menelly, Millichamp, Anna, Morton, Hannah, Nair, Vishnu, Pavlopoulou, Georgia, Pearson, A., Pellicano, Liz, Porter, H., Poulsen, Rebecca, Robertson, Zoe S., Rodriguez, Kayla, Roux, A., Russell, Mary, Ryan, J., Sasson, N., Grier, Holly Smith, Somerville, Mark, Sorensen, Cole, Stockwell, Kayden M., Szymanski, Tauna, Thompson‐Hodgetts, Sandy, van Driel, Martine, VanUitert, Victoria, Waldock, Krysia, Walker, Nick, Watts, Courtney, Williams, Zachary, Woods, R., Yu, Betty, Zadow, Meghan, Zimmerman, Jordyn and Zisk, Alyssa Hillary
KeywordsGenetics (clinical); Neurology (clinical); General Neuroscience
Year2023
JournalAutism research : official journal of the International Society for Autism Research
Journal citation16 (4), pp. 673-676
PublisherWiley
ISSN1939-3792
1939-3806
Digital Object Identifier (DOI)https://doi.org/10.1002/aur.2928
Publication dates
Online22 Apr 2023
Publication process dates
Accepted11 Mar 2023
Deposited10 May 2023
Accepted author manuscript
License
File Access Level
Open
Additional information

This is the peer reviewed version of the following article: Anti-ableist language is fully compatible with high-quality autism research: Response to Singer et al. (2023), which has been published in final form at https://doi.org/10.1002/aur.2928. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Use of Self-Archived Versions. This article may not be enhanced, enriched or otherwise transformed into a derivative work, without express permission from Wiley or by statutory rights under applicable legislation. Copyright notices must not be removed, obscured or modified. The article must be linked to Wiley’s version of record on Wiley Online Library and any embedding, framing or otherwise making available the article or pages thereof by third parties from platforms, services and websites other than Wiley Online Library must be prohibited

Licensehttp://onlinelibrary.wiley.com/termsAndConditions#vor
Permalink -

https://openresearch.lsbu.ac.uk/item/93y9w

Download files


Accepted author manuscript
LetterToTheEditor_AutismResearch.pdf
License: CC BY-NC 4.0
File access level: Open

  • 72
    total views
  • 29
    total downloads
  • 1
    views this month
  • 1
    downloads this month

Export as

Related outputs

Autism and anaesthesia: a simple framework for everyday practice
Brown, S., Rabenstein, K. and Doherty, M. (2024). Autism and anaesthesia: a simple framework for everyday practice. BJA Education. 24 (4), pp. 129-137. https://doi.org/10.1016/j.bjae.2024.01.002
Demand-Avoidance Phenomena: Further research is required to evaluate risks.
Woods, R. (2024). Demand-Avoidance Phenomena: Further research is required to evaluate risks. The Lancet Child & Adolescent Health.
Perspectives of autistic adolescent girls and women on the determinants of their mental health and social and emotional well-being: A systematic review and thematic synthesis of lived experience
O’Connor, R., Doherty, M., Ryan-Enright, T. and Gaynor, K. (2024). Perspectives of autistic adolescent girls and women on the determinants of their mental health and social and emotional well-being: A systematic review and thematic synthesis of lived experience. Autism. 28 (4), pp. 816-830. https://doi.org/10.1177/13623613231215026
An Interpretive Phenomenological Analysis of the Experiences of Autistic Psychiatrists: “If We Can't Recognize Ourselves, How Can We Diagnose Autistic Patients Accurately?”
Doherty, M., Chown, N., Martin, N. and Shaw, S. (2024). An Interpretive Phenomenological Analysis of the Experiences of Autistic Psychiatrists: “If We Can't Recognize Ourselves, How Can We Diagnose Autistic Patients Accurately?”. INSAR 2023. Stockholm, Sweden 15 - 18 May 2023 International Society for Autism Research.
The likely adverse effects of “Profound Autism” and “PDA Profile of ASD” discourses.
Woods, R. (2023). The likely adverse effects of “Profound Autism” and “PDA Profile of ASD” discourses. Disability Research Forum. Online 18 Dec 2023
Critical reflections on autism advocacy for and against autism subtypes.
Woods, R. (2023). Critical reflections on autism advocacy for and against autism subtypes. Centre for Disability Studies Postgraduate Conference 2023. University of Leeds. 21 - 21 Oct 2023 University of Leeds.
Barriers to healthcare and a ‘triple empathy problem’ may lead to adverse outcomes for autistic adults: A qualitative study
Shaw, S.C.K., Carravallah, L., Johnson, M., O’Sullivan, J., Chown, N., Neilson, S. and Doherty, M. (2023). Barriers to healthcare and a ‘triple empathy problem’ may lead to adverse outcomes for autistic adults: A qualitative study. Autism. https://doi.org/10.1177/13623613231205629
"Pathological Demand-Avoidance" (PDA): A "pathological"/ extreme avoidance to its hype.
Woods, R. (2023). "Pathological Demand-Avoidance" (PDA): A "pathological"/ extreme avoidance to its hype. ECHO Autism Summer Pop-up Session: PDA.
What if “PDA Profile of ASD” advocates are confusing non-autism features with autism?
Woods, R. (2023). What if “PDA Profile of ASD” advocates are confusing non-autism features with autism? Autscape 2023.. The Hayes conference centre, Swanwick, Alfreton, Derbyshire, DE55 1AU. 31 Jul - 03 Aug 2023
‘Profound Autism’: The Dire Consequences of Diagnostic Overshadowing
Woods, R., Williams, K. and Watts, C. (2023). ‘Profound Autism’: The Dire Consequences of Diagnostic Overshadowing. Autism Research. 16 (9), pp. 1656-1657. https://doi.org/10.1002/aur.2985
Unmet need, epistemic injustice and early death: how social policy for Autistic adults in England and Wales fails to slay Beveridge’s Five Giants
Grant, A., Williams, G., Williams, K. and Woods, R. (2023). Unmet need, epistemic injustice and early death: how social policy for Autistic adults in England and Wales fails to slay Beveridge’s Five Giants. in: Cefalo, R, Rose, M. and Jolly, A. (ed.) Social Policy Review 35: Analysis and Debate in Social Policy, 2023 Bristol Bristol University Press. pp. 239-257
“Pathological Demand-Avoidance” as a “Profile of ASD” & “Profound Autism”.
Woods, R. (2023). “Pathological Demand-Avoidance” as a “Profile of ASD” & “Profound Autism”. Critical Autism Studies Seminar. Edge Hill, UK 25 May 2023
“Pathological”/ “Extreme”/ “Rational” Demand-Avoidance: Reviewing and Refining its Contested Terrain Through an Educational Perspective. - A Frontiers in Education PDA special issue.
Woods, R. “Pathological”/ “Extreme”/ “Rational” Demand-Avoidance: Reviewing and Refining its Contested Terrain Through an Educational Perspective. - A Frontiers in Education PDA special issue. https://doi.org/10.31219/osf.io/be65g
Demand Avoidance Phenomena (Pathological Extreme ” Demand Avoidance): What if it is a Neurodevelopmental Disorder?
Woods, R. (2022). Demand Avoidance Phenomena (Pathological Extreme ” Demand Avoidance): What if it is a Neurodevelopmental Disorder? Disability Research Forum Event 3. Sheffield Hallam 12 - 12 Dec 2022
Development and Validation of a Novel Self-Report Measure of Monotropism in Autism
Woods, R. (2022). Development and Validation of a Novel Self-Report Measure of Monotropism in Autism. University of Edinburgh. https://doi.org/10.13140/RG.2.2.15489.94565
PDA: a Preventable Delicate Activity
Woods, R. (2022). PDA: a Preventable Delicate Activity. National Autistic Society.
Barriers to healthcare and self-reported adverse outcomes for autistic adults: a cross-sectional study
Doherty, M., Neilson, S., O'Sullivan, J., Carravallah, L., Johnson, M., Cullen, W. and Shaw, S.C.K. (2022). Barriers to healthcare and self-reported adverse outcomes for autistic adults: a cross-sectional study. BMJ Open. https://doi.org/10.1136/bmjopen-2021-056904
Rational (Pathological) Demand Avoidance: As a Mental Disorder and an Evolving Social Construct
Woods, R. (2022). Rational (Pathological) Demand Avoidance: As a Mental Disorder and an Evolving Social Construct. in: The Routledge International Handbook of Critical Autism Studies Routledge.
Autistic Perspectives on the Future of Clinical Autism Research
Pukki, H., Bettin, J., Outlaw, A.G., Hennessy, J., Brook, K., Dekker, M., Doherty, M., Shaw, S.C.K., Bervoets, J., Rudolph, S., Corneloup, T., Derwent, K., Lee, O., Garcia Rojas, Y., Lawson, W., Vidal Gutierrez, M., Petek, K., Tsiakkirou, M., Suoninen, A., Minchin, J., Döhle, R., Lipinski, S., Natri, H., Reardon, E., Villarreal Estrada, G., Platon, O., Chown, N., Satsuki, A., Milton, D., Walker, N., Roldan, O., Herrán, B., Limón Cañedo, C., McCowan, S., Johnson, M., Turner, E.J., Lammers, J. and Yoon, w-h. (2022). Autistic Perspectives on the Future of Clinical Autism Research. Autism in Adulthood. 4 (2), pp. 93-101. https://doi.org/10.1089/aut.2022.0017
Demand Avoidance Phenomena (“ Pathological ”/ Extreme ” Demand Avoidance): As a Social Construct.
Woods, R. (2022). Demand Avoidance Phenomena (“ Pathological ”/ Extreme ” Demand Avoidance): As a Social Construct. PARC Critical Autism Studies 2022. 07 Apr 2022
Autism & mental health
Woods, R. (2022). Autism & mental health. Inclusion for all? Working with autistic people. Oxford 31 Mar 2022
Creating truly radical change in autism research: A response to Frith and Mottron.
Pearson, A., Woods, R., Morgan, Hayley and Botha, M. (2021). Creating truly radical change in autism research: A response to Frith and Mottron. Autism research : official journal of the International Society for Autism Research. https://doi.org/10.1002/aur.2605
Demand-Avoidance Phenomena (“Pathological”/”Extreme” Demand Avoidance): what are the implications of it being a biopower identity?
Woods, R. (2021). Demand-Avoidance Phenomena (“Pathological”/”Extreme” Demand Avoidance): what are the implications of it being a biopower identity? Disability Research Forum. Sheffield Hallam University, City Campus. Charles Street Building, Room 12.2.19 (This is on the second floor), Howard Street, S1 1WB 12 Dec 2019
Demand-Avoidance Phenomena (“Pathological”/ “Extreme” Demand Avoidance): It’s four schools of thought, and how you may conceptualise it?
Woods, R. (2021). Demand-Avoidance Phenomena (“Pathological”/ “Extreme” Demand Avoidance): It’s four schools of thought, and how you may conceptualise it? Children and Technology Lab. Sussex, UK 18 - 18 Nov 2021
Demand-Avoidance Phenomena (“Pathological”/ “Extreme” Demand Avoidance): As a biopower identity?
Woods, R. (2021). Demand-Avoidance Phenomena (“Pathological”/ “Extreme” Demand Avoidance): As a biopower identity? Participatory Autism Research Collective: Critical Autism Studies. Online 19 - 19 Oct 2021
Pathological demand avoidance (PDA): Its four schools of thought.
Woods, R. (2021). Pathological demand avoidance (PDA): Its four schools of thought. Neurodevelopmental Psychology Forum: Newsletter of the Developmental Section. 94 (2), pp. 10 - 14.
Rights of non-autistic children and young persons with PDA
Woods, R. (2021). Rights of non-autistic children and young persons with PDA. free.
Demand Avoidance Phenomena (“Pathological”/ “Extreme” Demand Avoidance): is it a Disorder at a lower diagnostic threshold?
Woods, R. (2021). Demand Avoidance Phenomena (“Pathological”/ “Extreme” Demand Avoidance): is it a Disorder at a lower diagnostic threshold? Online Participatory Research Collective: Understanding PDA. Online. 20 - 20 Jul 2021 The Nottingham Autism Research Team.
PDA – a new type of disorder?
Woods, R. (2020). PDA – a new type of disorder? The British Psychological Society.
Pathological Demand Avoidance and the DSM-5: a rebuttal to Judy Eaton’s response
Woods, R. (2020). Pathological Demand Avoidance and the DSM-5: a rebuttal to Judy Eaton’s response. Good Autism Practice. 21 (1), pp. 74 - 76.
Commentary: Demand Avoidance Phenomena, a manifold issue? Intolerance of uncertainty and anxiety as explanatory frameworks for extreme demand avoidance in children and adolescents – a commentary on Stuart et al. (2020)
Woods, R. (2020). Commentary: Demand Avoidance Phenomena, a manifold issue? Intolerance of uncertainty and anxiety as explanatory frameworks for extreme demand avoidance in children and adolescents – a commentary on Stuart et al. (2020). Child and Adolescent Mental Health. 25 (2), pp. 68 -70.. https://doi.org/10.1111/camh.12368
Critical Autism Studies
Woods, R. and Waldock, K. (2020). Critical Autism Studies. in: Encyclopedia of Autism Spectrum Disorders Springer.
Pathological Demand Avoidance (PDA)
Woods, R. (2020). Pathological Demand Avoidance (PDA). in: Encyclopedia of Autism Spectrum Disorders Springer.
The strength of autistic expertise and its implications for autism knowledge production: A response to Damian Milton.
Woods, R. and Waltz, M. The strength of autistic expertise and its implications for autism knowledge production: A response to Damian Milton. Autonomy, the Critical Journal of Interdisciplinary Autism Studies.. 1 (6).
An Updated Interest Based Account (Monotropism theory) & a Demand Avoidance Phenomenon discussion.
Woods, R. (2019). An Updated Interest Based Account (Monotropism theory) & a Demand Avoidance Phenomenon discussion. Disability Research Forum. Sheffield Hallam University, City Campus. Charles Street Building, Room 12.2.19 (This is on the second floor), Howard Street, S1 1WB 12 Dec 2019
Demand Avoidance Phenomena (Pathological Demand Avoidance): an ethical challenge to its orthodoxy.
Woods, R. (2019). Demand Avoidance Phenomena (Pathological Demand Avoidance): an ethical challenge to its orthodoxy. PARC Critical Autism Studies Conference 2019. Keyworth Street, London South Bank University (LSBU), London, SE1 6LN. 04 Jun 2019
An Updated Interest Based Account (Monotropism theory): A Developmental Model and Demand Avoidance Phenomena.
Woods, R. (2019). An Updated Interest Based Account (Monotropism theory): A Developmental Model and Demand Avoidance Phenomena. PDA Conference. Oslo 01 Nov 2019 SPISS.
Demand Avoidance Phenomena (Pathological Demand Avoidance): Core Issues, Attachment, Trauma & Looked After Children.
Woods, R. (2019). Demand Avoidance Phenomena (Pathological Demand Avoidance): Core Issues, Attachment, Trauma & Looked After Children. Workshop on Subtyping Autism. London South Bank University 19 Nov 2019 Participatory Autism Research Collective (PARC).
Is the concept of Demand Avoidance Phenomena (Pathological Demand Avoidance) real or mythical?
Woods, R. (2019). Is the concept of Demand Avoidance Phenomena (Pathological Demand Avoidance) real or mythical? Disability Research Forum. Sheffield Hallam University, City Campus. Charles Street Building, Room 12.2.19 (This is on the second floor), Howard Street, S1 1WB 12 Dec 2019 https://doi.org/10.13140/RG.2.2.35499.18728/2
A demand to avoid demand avoidance?
Woods, R. (2019). A demand to avoid demand avoidance? British Psychological Society.
Empathy and a Personalised Approach in Autism
Woods, R., Waldock, K., Keates, N. and Morgan, H. (2019). Empathy and a Personalised Approach in Autism. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-019-04287-4
Demand avoidance phenomena: circularity, integrity and validity – a commentary on the 2018 National Autistic Society PDA Conference
Woods, R. (2019). Demand avoidance phenomena: circularity, integrity and validity – a commentary on the 2018 National Autistic Society PDA Conference. Good Autism Practice. 20 (2), pp. 28 - 40.
Pathological Demand Avoidance: Is it time to move beyond the pathological need to not to develop more inclusive pedagogical practices?
Woods, R. (2019). Pathological Demand Avoidance: Is it time to move beyond the pathological need to not to develop more inclusive pedagogical practices? Autonomy, the Critical Journal of Interdisciplinary Autism Studies.. 1 (6).
An Interest Based Account (Monotropism theory) explanation of anxiety in Autism & a Demand Avoidance Phenomenon discussion.
Woods, R. (2018). An Interest Based Account (Monotropism theory) explanation of anxiety in Autism & a Demand Avoidance Phenomenon discussion. Innovation in Autism Practice: The Future is Calling. Grand Central Hotel, Glasgow UK 08 - 09 Nov 2018 Scottish Autism.
Neurodiversity Movement and Rational Demand Avoidance: The clash of 2 competing biopower technologies in action
Woods, R. (2018). Neurodiversity Movement and Rational Demand Avoidance: The clash of 2 competing biopower technologies in action. PARC Critical Autism Studies Conference 2018. Keyworth Street, London South Bank University (LSBU), London, SE1 6LN. 18 Jul 2018 Participatory Autism Research Collective (PARC).
Rational (Pathological) Demand Avoidance: what it is not, what it could be & what it does.
Woods, R. (2018). Rational (Pathological) Demand Avoidance: what it is not, what it could be & what it does. Critical Perspectives on Pathological Demand Avoidance (PDA). K2 building, Keyworth Street, London South Bank University 15 May 2018 Participatory Autism Research Collective (PARC).
Redefining Critical Autism Studies: a more inclusive interpretation
Woods, R., Milton, D., Arnold, L. and Graby, S. (2018). Redefining Critical Autism Studies: a more inclusive interpretation. Disability & Society. 33 (6), pp. 974-979. https://doi.org/10.1080/09687599.2018.1454380
Exploring how the social model of disability can be re-invigorated for autism: in response to Jonathan Levitt
Woods, R. (2017). Exploring how the social model of disability can be re-invigorated for autism: in response to Jonathan Levitt. Disability & Society. 32 (7), pp. 1090-1095. https://doi.org/10.1080/09687599.2017.1328157
Pathological demand avoidance: my thoughts on looping effects and commodification of autism
Woods, R. (2017). Pathological demand avoidance: my thoughts on looping effects and commodification of autism. Disability & Society. 32 (5), pp. 753-758. https://doi.org/10.1080/09687599.2017.1308705
It was just an honest mistake…
Woods, R. (2016). It was just an honest mistake….