‘Profound Autism’: The Dire Consequences of Diagnostic Overshadowing

Journal article

Woods, R., Williams, K. and Watts, C. (2023). ‘Profound Autism’: The Dire Consequences of Diagnostic Overshadowing. Autism Research. 16 (9), pp. 1656-1657. https://doi.org/10.1002/aur.2985

Publication dates
Authors	Woods, R., Williams, K. and Watts, C.
Abstract	Letter to the editor
Keywords	Autism subgroups; diagnostic categories; diagnostic overshadowing; disorders; Pathological Demand Avoidance; Profound Autism.
Year	2023
Journal	Autism Research
Journal citation	16 (9), pp. 1656-1657
Publisher	Wiley
ISSN	1939-3806
Digital Object Identifier (DOI)	https://doi.org/10.1002/aur.2985
Print	15 Aug 2023
Publication process dates
Accepted	28 Jun 2023
Deposited	05 Jul 2023
Accepted author manuscript	AUR-23-0135_R1.docx License CC BY 4.0 File Access Level Open
Additional information	This is the accepted version of the article. It's references is: Woods, R., Williams, K., & Watts, C. (2023). ‘Profound Autism’: The Dire Consequences of Diagnostic Overshadowing. Autism Research.

Permalink -

https://openresearch.lsbu.ac.uk/item/945z3

Download files

Accepted author manuscript

	AUR-23-0135_R1.docx
License: CC BY 4.0
File access level: Open

121
total views
76
total downloads
4
views this month
16
downloads this month

Export as

Related outputs

Demand-Avoidance Phenomena: Further research is required to evaluate risks.

Woods, R. (2024). Demand-Avoidance Phenomena: Further research is required to evaluate risks. The Lancet Child & Adolescent Health.

The likely adverse effects of “Profound Autism” and “PDA Profile of ASD” discourses.

Woods, R. (2023). The likely adverse effects of “Profound Autism” and “PDA Profile of ASD” discourses. Disability Research Forum. Online 18 Dec 2023

Critical reflections on autism advocacy for and against autism subtypes.

Woods, R. (2023). Critical reflections on autism advocacy for and against autism subtypes. Centre for Disability Studies Postgraduate Conference 2023. University of Leeds. 21 - 21 Oct 2023 University of Leeds.

"Pathological Demand-Avoidance" (PDA): A "pathological"/ extreme avoidance to its hype.

Woods, R. (2023). "Pathological Demand-Avoidance" (PDA): A "pathological"/ extreme avoidance to its hype. ECHO Autism Summer Pop-up Session: PDA.

What if “PDA Profile of ASD” advocates are confusing non-autism features with autism?

Woods, R. (2023). What if “PDA Profile of ASD” advocates are confusing non-autism features with autism? Autscape 2023.. The Hayes conference centre, Swanwick, Alfreton, Derbyshire, DE55 1AU. 31 Jul - 03 Aug 2023

Unmet need, epistemic injustice and early death: how social policy for Autistic adults in England and Wales fails to slay Beveridge’s Five Giants

Grant, A., Williams, G., Williams, K. and Woods, R. (2023). Unmet need, epistemic injustice and early death: how social policy for Autistic adults in England and Wales fails to slay Beveridge’s Five Giants. in: Cefalo, R, Rose, M. and Jolly, A. (ed.) Social Policy Review 35: Analysis and Debate in Social Policy, 2023 Bristol Bristol University Press. pp. 239-257

“Pathological Demand-Avoidance” as a “Profile of ASD” & “Profound Autism”.

Woods, R. (2023). “Pathological Demand-Avoidance” as a “Profile of ASD” & “Profound Autism”. Critical Autism Studies Seminar. Edge Hill, UK 25 May 2023

Anti‐ableist language is fully compatible with high‐quality autism research: Response to Singer et al. (2023)

Natri, Heini M., Abubakare, Oluwatobi, Asasumasu, Kassiane, Basargekar, Abha, Beaud, Flavien, Botha, Monique, Bottema‐Beutel, Kristen, Brea, Maria Rosa, Brown, Lydia X. Z., Burr, Daisy A., Cobbaert, Laurence, Dabbs, C., Denome, Donnie, Rosa, Shannon Des Roches, Doherty, M., Edwards, Beth, Edwards, Chris, Liszk, Síle Ekaterin, Elise, Freya, Fletcher‐Watson, Sue, Flower, Rebecca L., Fuller, Stephanie, Gassner, Dena, Onaiwu, M., Good, Judith, Grant, Aimee, Haddix, Vicki L., Heraty, Síofra, Hundt, Andrew, Kapp, Steven K., Keates, Nathan, Kulshan, Trayle, Lampi, Andrew J., Latimer, Oswin, Leadbitter, Kathy, Tidd, Jennifer Litton, Manalili, M., Martin, Menelly, Millichamp, Anna, Morton, Hannah, Nair, Vishnu, Pavlopoulou, Georgia, Pearson, A., Pellicano, Liz, Porter, H., Poulsen, Rebecca, Robertson, Zoe S., Rodriguez, Kayla, Roux, A., Russell, Mary, Ryan, J., Sasson, N., Grier, Holly Smith, Somerville, Mark, Sorensen, Cole, Stockwell, Kayden M., Szymanski, Tauna, Thompson‐Hodgetts, Sandy, van Driel, Martine, VanUitert, Victoria, Waldock, Krysia, Walker, Nick, Watts, Courtney, Williams, Zachary, Woods, R., Yu, Betty, Zadow, Meghan, Zimmerman, Jordyn and Zisk, Alyssa Hillary (2023). Anti‐ableist language is fully compatible with high‐quality autism research: Response to Singer et al. (2023). Autism research : official journal of the International Society for Autism Research. 16 (4), pp. 673-676. https://doi.org/10.1002/aur.2928

“Pathological”/ “Extreme”/ “Rational” Demand-Avoidance: Reviewing and Refining its Contested Terrain Through an Educational Perspective. - A Frontiers in Education PDA special issue.

Woods, R. “Pathological”/ “Extreme”/ “Rational” Demand-Avoidance: Reviewing and Refining its Contested Terrain Through an Educational Perspective. - A Frontiers in Education PDA special issue. https://doi.org/10.31219/osf.io/be65g

Demand Avoidance Phenomena (Pathological Extreme ” Demand Avoidance): What if it is a Neurodevelopmental Disorder?

Woods, R. (2022). Demand Avoidance Phenomena (Pathological Extreme ” Demand Avoidance): What if it is a Neurodevelopmental Disorder? Disability Research Forum Event 3. Sheffield Hallam 12 - 12 Dec 2022

Development and Validation of a Novel Self-Report Measure of Monotropism in Autism

Woods, R. (2022). Development and Validation of a Novel Self-Report Measure of Monotropism in Autism. University of Edinburgh. https://doi.org/10.13140/RG.2.2.15489.94565

PDA: a Preventable Delicate Activity

Woods, R. (2022). PDA: a Preventable Delicate Activity. National Autistic Society.

Rational (Pathological) Demand Avoidance: As a Mental Disorder and an Evolving Social Construct

Woods, R. (2022). Rational (Pathological) Demand Avoidance: As a Mental Disorder and an Evolving Social Construct. in: The Routledge International Handbook of Critical Autism Studies Routledge.

Demand Avoidance Phenomena (“ Pathological ”/ Extreme ” Demand Avoidance): As a Social Construct.

Woods, R. (2022). Demand Avoidance Phenomena (“ Pathological ”/ Extreme ” Demand Avoidance): As a Social Construct. PARC Critical Autism Studies 2022. 07 Apr 2022

Autism & mental health

Woods, R. (2022). Autism & mental health. Inclusion for all? Working with autistic people. Oxford 31 Mar 2022

Creating truly radical change in autism research: A response to Frith and Mottron.

Pearson, A., Woods, R., Morgan, Hayley and Botha, M. (2021). Creating truly radical change in autism research: A response to Frith and Mottron. Autism research : official journal of the International Society for Autism Research. https://doi.org/10.1002/aur.2605

Demand-Avoidance Phenomena (“Pathological”/”Extreme” Demand Avoidance): what are the implications of it being a biopower identity?

Woods, R. (2021). Demand-Avoidance Phenomena (“Pathological”/”Extreme” Demand Avoidance): what are the implications of it being a biopower identity? Disability Research Forum. Sheffield Hallam University, City Campus. Charles Street Building, Room 12.2.19 (This is on the second floor), Howard Street, S1 1WB 12 Dec 2019

Demand-Avoidance Phenomena (“Pathological”/ “Extreme” Demand Avoidance): It’s four schools of thought, and how you may conceptualise it?

Woods, R. (2021). Demand-Avoidance Phenomena (“Pathological”/ “Extreme” Demand Avoidance): It’s four schools of thought, and how you may conceptualise it? Children and Technology Lab. Sussex, UK 18 - 18 Nov 2021

Demand-Avoidance Phenomena (“Pathological”/ “Extreme” Demand Avoidance): As a biopower identity?

Woods, R. (2021). Demand-Avoidance Phenomena (“Pathological”/ “Extreme” Demand Avoidance): As a biopower identity? Participatory Autism Research Collective: Critical Autism Studies. Online 19 - 19 Oct 2021

Pathological demand avoidance (PDA): Its four schools of thought.

Woods, R. (2021). Pathological demand avoidance (PDA): Its four schools of thought. Neurodevelopmental Psychology Forum: Newsletter of the Developmental Section. 94 (2), pp. 10 - 14.

Rights of non-autistic children and young persons with PDA

Woods, R. (2021). Rights of non-autistic children and young persons with PDA. free.

Demand Avoidance Phenomena (“Pathological”/ “Extreme” Demand Avoidance): is it a Disorder at a lower diagnostic threshold?

Woods, R. (2021). Demand Avoidance Phenomena (“Pathological”/ “Extreme” Demand Avoidance): is it a Disorder at a lower diagnostic threshold? Online Participatory Research Collective: Understanding PDA. Online. 20 - 20 Jul 2021 The Nottingham Autism Research Team.

PDA – a new type of disorder?

Woods, R. (2020). PDA – a new type of disorder? The British Psychological Society.

Pathological Demand Avoidance and the DSM-5: a rebuttal to Judy Eaton’s response

Woods, R. (2020). Pathological Demand Avoidance and the DSM-5: a rebuttal to Judy Eaton’s response. Good Autism Practice. 21 (1), pp. 74 - 76.

Commentary: Demand Avoidance Phenomena, a manifold issue? Intolerance of uncertainty and anxiety as explanatory frameworks for extreme demand avoidance in children and adolescents – a commentary on Stuart et al. (2020)

Woods, R. (2020). Commentary: Demand Avoidance Phenomena, a manifold issue? Intolerance of uncertainty and anxiety as explanatory frameworks for extreme demand avoidance in children and adolescents – a commentary on Stuart et al. (2020). Child and Adolescent Mental Health. 25 (2), pp. 68 -70.. https://doi.org/10.1111/camh.12368

Critical Autism Studies

Woods, R. and Waldock, K. (2020). Critical Autism Studies. in: Encyclopedia of Autism Spectrum Disorders Springer.

Pathological Demand Avoidance (PDA)

Woods, R. (2020). Pathological Demand Avoidance (PDA). in: Encyclopedia of Autism Spectrum Disorders Springer.

The strength of autistic expertise and its implications for autism knowledge production: A response to Damian Milton.

Woods, R. and Waltz, M. The strength of autistic expertise and its implications for autism knowledge production: A response to Damian Milton. Autonomy, the Critical Journal of Interdisciplinary Autism Studies.. 1 (6).

An Updated Interest Based Account (Monotropism theory) & a Demand Avoidance Phenomenon discussion.

Woods, R. (2019). An Updated Interest Based Account (Monotropism theory) & a Demand Avoidance Phenomenon discussion. Disability Research Forum. Sheffield Hallam University, City Campus. Charles Street Building, Room 12.2.19 (This is on the second floor), Howard Street, S1 1WB 12 Dec 2019

Demand Avoidance Phenomena (Pathological Demand Avoidance): an ethical challenge to its orthodoxy.

Woods, R. (2019). Demand Avoidance Phenomena (Pathological Demand Avoidance): an ethical challenge to its orthodoxy. PARC Critical Autism Studies Conference 2019. Keyworth Street, London South Bank University (LSBU), London, SE1 6LN. 04 Jun 2019

An Updated Interest Based Account (Monotropism theory): A Developmental Model and Demand Avoidance Phenomena.

Woods, R. (2019). An Updated Interest Based Account (Monotropism theory): A Developmental Model and Demand Avoidance Phenomena. PDA Conference. Oslo 01 Nov 2019 SPISS.

Demand Avoidance Phenomena (Pathological Demand Avoidance): Core Issues, Attachment, Trauma & Looked After Children.

Woods, R. (2019). Demand Avoidance Phenomena (Pathological Demand Avoidance): Core Issues, Attachment, Trauma & Looked After Children. Workshop on Subtyping Autism. London South Bank University 19 Nov 2019 Participatory Autism Research Collective (PARC).

Is the concept of Demand Avoidance Phenomena (Pathological Demand Avoidance) real or mythical?

Woods, R. (2019). Is the concept of Demand Avoidance Phenomena (Pathological Demand Avoidance) real or mythical? Disability Research Forum. Sheffield Hallam University, City Campus. Charles Street Building, Room 12.2.19 (This is on the second floor), Howard Street, S1 1WB 12 Dec 2019 https://doi.org/10.13140/RG.2.2.35499.18728/2

A demand to avoid demand avoidance?

Woods, R. (2019). A demand to avoid demand avoidance? British Psychological Society.

Empathy and a Personalised Approach in Autism

Woods, R., Waldock, K., Keates, N. and Morgan, H. (2019). Empathy and a Personalised Approach in Autism. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-019-04287-4

Demand avoidance phenomena: circularity, integrity and validity – a commentary on the 2018 National Autistic Society PDA Conference

Woods, R. (2019). Demand avoidance phenomena: circularity, integrity and validity – a commentary on the 2018 National Autistic Society PDA Conference. Good Autism Practice. 20 (2), pp. 28 - 40.

Pathological Demand Avoidance: Is it time to move beyond the pathological need to not to develop more inclusive pedagogical practices?

Woods, R. (2019). Pathological Demand Avoidance: Is it time to move beyond the pathological need to not to develop more inclusive pedagogical practices? Autonomy, the Critical Journal of Interdisciplinary Autism Studies.. 1 (6).

An Interest Based Account (Monotropism theory) explanation of anxiety in Autism & a Demand Avoidance Phenomenon discussion.

Woods, R. (2018). An Interest Based Account (Monotropism theory) explanation of anxiety in Autism & a Demand Avoidance Phenomenon discussion. Innovation in Autism Practice: The Future is Calling. Grand Central Hotel, Glasgow UK 08 - 09 Nov 2018 Scottish Autism.

Neurodiversity Movement and Rational Demand Avoidance: The clash of 2 competing biopower technologies in action

Woods, R. (2018). Neurodiversity Movement and Rational Demand Avoidance: The clash of 2 competing biopower technologies in action. PARC Critical Autism Studies Conference 2018. Keyworth Street, London South Bank University (LSBU), London, SE1 6LN. 18 Jul 2018 Participatory Autism Research Collective (PARC).

Rational (Pathological) Demand Avoidance: what it is not, what it could be & what it does.

Woods, R. (2018). Rational (Pathological) Demand Avoidance: what it is not, what it could be & what it does. Critical Perspectives on Pathological Demand Avoidance (PDA). K2 building, Keyworth Street, London South Bank University 15 May 2018 Participatory Autism Research Collective (PARC).