Autistic Perspectives on the Future of Clinical Autism Research

Journal article


Pukki, H., Bettin, J., Outlaw, A.G., Hennessy, J., Brook, K., Dekker, M., Doherty, M., Shaw, S.C.K., Bervoets, J., Rudolph, S., Corneloup, T., Derwent, K., Lee, O., Garcia Rojas, Y., Lawson, W., Vidal Gutierrez, M., Petek, K., Tsiakkirou, M., Suoninen, A., Minchin, J., Döhle, R., Lipinski, S., Natri, H., Reardon, E., Villarreal Estrada, G., Platon, O., Chown, N., Satsuki, A., Milton, D., Walker, N., Roldan, O., Herrán, B., Limón Cañedo, C., McCowan, S., Johnson, M., Turner, E.J., Lammers, J. and Yoon, w-h. (2022). Autistic Perspectives on the Future of Clinical Autism Research. Autism in Adulthood. 4 (2), pp. 93-101. https://doi.org/10.1089/aut.2022.0017
AuthorsPukki, H., Bettin, J., Outlaw, A.G., Hennessy, J., Brook, K., Dekker, M., Doherty, M., Shaw, S.C.K., Bervoets, J., Rudolph, S., Corneloup, T., Derwent, K., Lee, O., Garcia Rojas, Y., Lawson, W., Vidal Gutierrez, M., Petek, K., Tsiakkirou, M., Suoninen, A., Minchin, J., Döhle, R., Lipinski, S., Natri, H., Reardon, E., Villarreal Estrada, G., Platon, O., Chown, N., Satsuki, A., Milton, D., Walker, N., Roldan, O., Herrán, B., Limón Cañedo, C., McCowan, S., Johnson, M., Turner, E.J., Lammers, J. and Yoon, w-h.
Abstract

There is no abstract for this article

Keywordsautistic people’s priorities, autism research, collaborative participation, neurodiversity paradigm, participatory research
Year2022
JournalAutism in Adulthood
Journal citation4 (2), pp. 93-101
PublisherMary Ann Liebert Inc.
ISSN2573-9581
Digital Object Identifier (DOI)https://doi.org/10.1089/aut.2022.0017
Web address (URL)https://doi.org/10.1089/aut.2022.0017
Publication dates
Online25 Feb 2022
Publication process dates
Accepted01 Feb 2022
Deposited21 Jun 2022
Accepted author manuscript
License
File Access Level
Open
Additional information

This is the accepted version of the following article: Autistic Perspectives on the Future of Clinical Autism Research, which has now been formally published in final form at Autism in Adulthood at https://doi.org/10.1089/aut.2022.0017. This original submission version of the article may be used for non-commercial purposes in accordance with the Mary Ann Liebert, Inc., publishers’ self-archiving terms and conditions.

Permalink -

https://openresearch.lsbu.ac.uk/item/91095

Download files


Accepted author manuscript
Lancet response, final.docx
License: CC BY 4.0
File access level: Open

  • 80
    total views
  • 32
    total downloads
  • 1
    views this month
  • 0
    downloads this month

Export as

Related outputs

Autism and anaesthesia: a simple framework for everyday practice
Brown, S., Rabenstein, K. and Doherty, M. (2024). Autism and anaesthesia: a simple framework for everyday practice. BJA Education. 24 (4), pp. 129-137. https://doi.org/10.1016/j.bjae.2024.01.002
Perspectives of autistic adolescent girls and women on the determinants of their mental health and social and emotional well-being: A systematic review and thematic synthesis of lived experience
O’Connor, R., Doherty, M., Ryan-Enright, T. and Gaynor, K. (2024). Perspectives of autistic adolescent girls and women on the determinants of their mental health and social and emotional well-being: A systematic review and thematic synthesis of lived experience. Autism. 28 (4), pp. 816-830. https://doi.org/10.1177/13623613231215026
An Interpretive Phenomenological Analysis of the Experiences of Autistic Psychiatrists: “If We Can't Recognize Ourselves, How Can We Diagnose Autistic Patients Accurately?”
Doherty, M., Chown, N., Martin, N. and Shaw, S. (2024). An Interpretive Phenomenological Analysis of the Experiences of Autistic Psychiatrists: “If We Can't Recognize Ourselves, How Can We Diagnose Autistic Patients Accurately?”. INSAR 2023. Stockholm, Sweden 15 - 18 May 2023 International Society for Autism Research.
Barriers to healthcare and a ‘triple empathy problem’ may lead to adverse outcomes for autistic adults: A qualitative study
Shaw, S.C.K., Carravallah, L., Johnson, M., O’Sullivan, J., Chown, N., Neilson, S. and Doherty, M. (2023). Barriers to healthcare and a ‘triple empathy problem’ may lead to adverse outcomes for autistic adults: A qualitative study. Autism. https://doi.org/10.1177/13623613231205629
Accommodation through personalisation: ensuring the autistic student has an equal opportunity for success in the PhD viva voce
Sandland, B., MacLeod, A., Hall, N. and Chown, N. (2023). Accommodation through personalisation: ensuring the autistic student has an equal opportunity for success in the PhD viva voce. Journal of Further and Higher Education. 47 (10), pp. 1404-1419. https://doi.org/10.1080/0309877x.2023.2250740
Introducing critical autism studies (CAS) from the Anglophone research
Lefebvre, M-E., Chown, N. and Martin, N. (2023). Introducing critical autism studies (CAS) from the Anglophone research. Canadian Journal of Disability Studies. 12 (1).
Anti‐ableist language is fully compatible with high‐quality autism research: Response to Singer et al. (2023)
Natri, Heini M., Abubakare, Oluwatobi, Asasumasu, Kassiane, Basargekar, Abha, Beaud, Flavien, Botha, Monique, Bottema‐Beutel, Kristen, Brea, Maria Rosa, Brown, Lydia X. Z., Burr, Daisy A., Cobbaert, Laurence, Dabbs, C., Denome, Donnie, Rosa, Shannon Des Roches, Doherty, M., Edwards, Beth, Edwards, Chris, Liszk, Síle Ekaterin, Elise, Freya, Fletcher‐Watson, Sue, Flower, Rebecca L., Fuller, Stephanie, Gassner, Dena, Onaiwu, M., Good, Judith, Grant, Aimee, Haddix, Vicki L., Heraty, Síofra, Hundt, Andrew, Kapp, Steven K., Keates, Nathan, Kulshan, Trayle, Lampi, Andrew J., Latimer, Oswin, Leadbitter, Kathy, Tidd, Jennifer Litton, Manalili, M., Martin, Menelly, Millichamp, Anna, Morton, Hannah, Nair, Vishnu, Pavlopoulou, Georgia, Pearson, A., Pellicano, Liz, Porter, H., Poulsen, Rebecca, Robertson, Zoe S., Rodriguez, Kayla, Roux, A., Russell, Mary, Ryan, J., Sasson, N., Grier, Holly Smith, Somerville, Mark, Sorensen, Cole, Stockwell, Kayden M., Szymanski, Tauna, Thompson‐Hodgetts, Sandy, van Driel, Martine, VanUitert, Victoria, Waldock, Krysia, Walker, Nick, Watts, Courtney, Williams, Zachary, Woods, R., Yu, Betty, Zadow, Meghan, Zimmerman, Jordyn and Zisk, Alyssa Hillary (2023). Anti‐ableist language is fully compatible with high‐quality autism research: Response to Singer et al. (2023). Autism research : official journal of the International Society for Autism Research. 16 (4), pp. 673-676. https://doi.org/10.1002/aur.2928
General Practitioner Autism Training and Mandatory Medical Training: A Cross-Sectional Study of GPs’ Knowledge, Attitudes and Practices
Chown, N., Shaw, S.C.K., Doherty, M., Johnson, M., Krupa, J., Martin, N. and Brooker-Corcoran, M. (2023). General Practitioner Autism Training and Mandatory Medical Training: A Cross-Sectional Study of GPs’ Knowledge, Attitudes and Practices. Canadian Journal of Educational and Social Studies . 3 (1), pp. 1-16. https://doi.org/10.53103/cjess.v3i1.99
Healthcare Barriers, Health Outcomes, and Annual Health Checks for Autistic Adults: A Cross-Sectional Study of General Practitioners’ Knowledge, Attitudes and Practices
Chown, N., Shaw, S.C.K., Doherty, M., Johnson, M., Krupa, J., Martin, N. and Brooker-Corcoran, M. (2022). Healthcare Barriers, Health Outcomes, and Annual Health Checks for Autistic Adults: A Cross-Sectional Study of General Practitioners’ Knowledge, Attitudes and Practices . Canadian Journal of Educational and Social Studies . 2 (4), pp. 179-199. https://doi.org/10.53103/cjess.v2i4.57
Barriers to healthcare and self-reported adverse outcomes for autistic adults: a cross-sectional study
Doherty, M., Neilson, S., O'Sullivan, J., Carravallah, L., Johnson, M., Cullen, W. and Shaw, S.C.K. (2022). Barriers to healthcare and self-reported adverse outcomes for autistic adults: a cross-sectional study. BMJ Open. https://doi.org/10.1136/bmjopen-2021-056904
England and Autism
Arnold, L., Milton, D., Beardon, L. and Chown, N. (2021). England and Autism. in: Encyclopedia of Autism Spectrum Disorders Springer Nature.
Can a person be ‘a bit autistic’? A response to Francesca Happé and Uta Frith
Chown, N. and Leatherland, J. (2020). Can a person be ‘a bit autistic’? A response to Francesca Happé and Uta Frith. Journal of Autism and Developmental Disorders. 51 (2), pp. 749-751. https://doi.org/10.1007/s10803-020-04541-0
Are the "autistic traits" and "broader autism phenotype" concepts real or mythical?
Chown, N. (2019). Are the "autistic traits" and "broader autism phenotype" concepts real or mythical? Autism Policy and Practice. 2 (1), pp. 46-63.
What about the other side of double empathy? A response to Alkhaldi, Sheppard and Mitchell's article concerning mind-reading difficulties in autism
Chown, N., Hughes, L. and Baker-Rogers, J. (2019). What about the other side of double empathy? A response to Alkhaldi, Sheppard and Mitchell's article concerning mind-reading difficulties in autism. Journal of Autism and Developmental Disorders. 50 (1), pp. 683-684. https://doi.org/10.1007/s10803-019-04263-y
First responders and autism
Chown, N., Beardon, L. and Cossburn, K. (2018). First responders and autism. in: Encyclopedia of Autism Spectrum Disorders New York
The 'Achieving More in College' project: Support for autistic students attending further education colleges
Chown, N., Baker-Rogers, J., Cossburn, K., Hughes, E., Beardon, L. and Leatherland, J. (2018). The 'Achieving More in College' project: Support for autistic students attending further education colleges. Good Autism Practice. 19 (1), pp. 50-62.
The 'High Achievers' project: An assessment of the support for students with autism attending United Kingdom universities
Chown, N., Baker-Rogers, J., Hughes, E., Cossburn, K. and Byrne, P. (2017). The 'High Achievers' project: An assessment of the support for students with autism attending United Kingdom universities. Journal of Further and Higher Education. 42 (6), pp. 837-854. https://doi.org/10.1080/0309877X.2017.1323191
Improving research about us, with us: A draft framework for inclusive autism research
Chown, N., Robinson, J., Beardon, L., Downing, J., Hughes, L., Leatherland, J., Fox, K., Hickman, L. and MacGregor, D. (2017). Improving research about us, with us: A draft framework for inclusive autism research. Disability & Society. 32 (5), pp. 720-734. https://doi.org/10.1080/09687599.2017.1320273