Improving research about us, with us: A draft framework for inclusive autism research
Journal article
Chown, N., Robinson, J., Beardon, L., Downing, J., Hughes, L., Leatherland, J., Fox, K., Hickman, L. and MacGregor, D. (2017). Improving research about us, with us: A draft framework for inclusive autism research. Disability & Society. 32 (5), pp. 720-734. https://doi.org/10.1080/09687599.2017.1320273
Authors | Chown, N., Robinson, J., Beardon, L., Downing, J., Hughes, L., Leatherland, J., Fox, K., Hickman, L. and MacGregor, D. |
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Abstract | t is both epistemologically as well as ethically problematic if the autistic voice is not heard in relation to social scientific research seeking to further develop knowledge of autism. Ever since autism first emerged, it has remained medicalised and almost exclusively the preserve of non-autistic researchers. More recently, autistic individuals have begun to contribute to autism research. However, the vast majority of research in autism is still undertaken on autistic people, rather than with them, and is often not concerned with improving the day-to-day lives of people with autism. We discuss the concepts of participatory research and emancipatory research before presenting a draft framework for what we regard as truly inclusive research in autism. Our proposals are firmly based on ideas developed by the members of a university-based group of autistic adults (the Asperger’s Consultation Group) as well as the knowledge and experience of the other contributors. |
Keywords | Asperger syndrome; autism; emancipatory research; participatory research; social model of disability |
Year | 2017 |
Journal | Disability & Society |
Journal citation | 32 (5), pp. 720-734 |
Publisher | Taylor & Francis |
Digital Object Identifier (DOI) | https://doi.org/10.1080/09687599.2017.1320273 |
Web address (URL) | https://www.tandfonline.com/doi/abs/10.1080/09687599.2017.1320273 |
Publication dates | |
05 May 2017 | |
Publication process dates | |
Accepted | 13 Apr 2017 |
Deposited | 20 Oct 2021 |
Accepted author manuscript | License File Access Level Open |
Additional information | his is an Accepted Manuscript of an article published by Taylor & Francis in Disability and Society on 05/05/2017, available online: http://www.tandfonline.com/10.1080/09687599.2017.1320273 |
https://openresearch.lsbu.ac.uk/item/8y14w
Download files
Accepted author manuscript
D&S inclusive autism research article with VoR statement.docx | ||
License: CC BY-NC 4.0 | ||
File access level: Open |
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