Young adults’ experiences of dialysis and kidney transplant decision-making.

PhD Thesis


Ofori-Ansah, S. (2022). Young adults’ experiences of dialysis and kidney transplant decision-making. PhD Thesis London South Bank University School of Allied and Community Health https://doi.org/10.18744/lsbu.92w1y
AuthorsOfori-Ansah, S.
TypePhD Thesis
Abstract

Background
Young adults with end-stage kidney disease make decisions to select a renal replacement therapy choice with the support of healthcare professionals once their kidneys fail. However, little is known about how they experience dialysis and kidney
transplant decision-making and the effects on their well-being.
Aim
The aim was to explore how young adults who are diagnosed with end-stage kidney disease experience dialysis and/or kidney transplant decision-making, understand the meaning of their lived experiences, and investigate the effects of decision-making andchoice on their well-being.
Methodology
Interpretive phenomenology, informed by Heidegger’s hermeneutic principles, was used to purposefully recruit young adults with end-stage kidney disease through social media. A qualitative design using semi-structured interviews were conducted and the data analysed using Braun and Clarke’s thematic analysis approach.
Findings
Eighteen participants aged 18-30 years old were interviewed. Five themes developed from the analysis include: (1) world turned upside down; (2) experience of information delivery about options; (3) the experience of making my voice heard; (4) experiencing the new normal; and (5) the impact of decision-making and choice on well-being.
Conclusion and original contribution
This study illuminates our understanding of how young adults experience kidney therapy decision-making and their unmet informational and decisional needs. The majority struggle to cope due to the lack of support during the decision-making process. Kidney therapy decision-making and experiencing choice about therapies affect young adults’whole world and significantly impact their physical, psychosocial, and mental well-being.This thesis proposes a four-talk model, adding a new phase (‘implement talk’) to the existing phases (team talk, option talk, decision talk), to address some of the young adults’ unmet decisional needs and better support their well-being during the decision-making process.

Year2022
PublisherLondon South Bank University
Digital Object Identifier (DOI)https://doi.org/10.18744/lsbu.92w1y
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Open
Publication dates
Print03 Nov 2022
Publication process dates
Deposited07 Dec 2022
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Related outputs

Young adults' experiences of dialysis and kidney transplant decision-making
Ofori-Ansah, S., Evans, M., Jones, J. and Thomas, N. (2021). Young adults' experiences of dialysis and kidney transplant decision-making. 49th EDTNA/ERCA International Conference. Virtual 04 - 07 Sep 2021
Young adults' experiences of decision-making: social media recruitment of participants
Ofori-Ansah, S., Jones, J., Evans, M. and Thomas, N. (2021). Young adults' experiences of decision-making: social media recruitment of participants. 49th EDTNA/ERCA International Conference. Virtual 04 - 07 Sep 2021 EDTNA/ERCA.
Decision‐making experiences of young adults with long‐term conditions
Ofori-Ansah, S., Evans, M., Jones, J. and Thomas, N. (2021). Decision‐making experiences of young adults with long‐term conditions. Journal of Renal Care. https://doi.org/10.1111/jorc.12367
Involvement of young people in a qualitative study that seeks to explore experiences of renal replacement therapy choice selection
Ofori-Ansah, S., Thomas, N., Jones, J., Evans, M. and Bullen, C Involvement of young people in a qualitative study that seeks to explore experiences of renal replacement therapy choice selection. UK Kidney Week Conference. Brighton 03 - 05 Jun 2019
Young adults' experiences of dialysis or kidney transplant decision-making
Ofori-Ansah, S., Thomas, N., Jones, J. and Evans, M. (2019). Young adults' experiences of dialysis or kidney transplant decision-making. PGR Summer School Conference. London South Bank University 01 - 04 Jul 2019
Involvement of young people in a qualitative study that seeks to explore experiences of renal replacement therapy choice selection
Ofori-Ansah, S., Thomas, N., Jones, J. and Evans, M. (2019). Involvement of young people in a qualitative study that seeks to explore experiences of renal replacement therapy choice selection . PGR Summer School Conference. London South Bank University 01 - 04 Jul 2019 London South Bank University.