What utility scores do mental health service users, healthcare professionals and members of the general public attribute to different health states? A co-produced mixed methods online survey

Journal article

Flood, C, Barlow, S, Simpson, A, Burls, A, Price, A, Cartwright, M, Brini, S and Service User and Carer Group Advising on Research (SUGAR) members (2018). What utility scores do mental health service users, healthcare professionals and members of the general public attribute to different health states? A co-produced mixed methods online survey. PLoS ONE. 13 (10), p. e0205223. https://doi.org/10.1371/journal.pone.0205223
AuthorsFlood, C, Barlow, S, Simpson, A, Burls, A, Price, A, Cartwright, M, Brini, S and Service User and Carer Group Advising on Research (SUGAR) members
Abstract

Utility scores are integral to health economics decision-making. Typically, utility scores have not been scored or developed with mental health service users. The aims of this study were to i) collaborate with service users to develop descriptions of five mental health states (psychosis, depression, eating disorder, medication side effects and self-harm); ii) explore feasibility and acceptability of using scenario-based health states in an e-survey; iii) evaluate which utility measures (standard gamble (SG), time trade off (TTO) and rating scale (RS)) are preferred; and iv) determine how different participant groups discriminate between the health scenarios and rank them.

KeywordsService User and Carer Group Advising on Research (SUGAR) members; Humans; Cross-Sectional Studies; Feasibility Studies; Depression; Self-Injurious Behavior; Decision Making; Psychotic Disorders; Mental Health Services; Psychiatric Status Rating Scales; Decision Support Techniques; Adult; Aged; Middle Aged; Caregivers; Mentally Ill Persons; Health Personnel; Cost-Benefit Analysis; Female; Male; Young Adult; Surveys and Questionnaires; Feeding and Eating Disorders; United Kingdom
Year2018
JournalPLoS ONE
Journal citation13 (10), p. e0205223
PublisherPublic Library of Science (PLoS)
ISSN1932-6203
Digital Object Identifier (DOI)https://doi.org/10.1371/journal.pone.0205223
Web address (URL)https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0205223
Publication dates
Print23 Oct 2018
Publication process dates
Deposited23 May 2019
Accepted21 Sep 2018
Publisher's version
License
File Access Level
Open
Permalink -

https://openresearch.lsbu.ac.uk/item/868z5

Download files

Publisher's version
What utility scores do mental health service users, healthcare professionals and members of the general public attribute to different health states? A co-produced mixed methods online survey.pdf
License: CC BY 4.0
File access level: Open

  • 145
    total views
  • 200
    total downloads
  • 1
    views this month
  • 0
    downloads this month

Export as

Related outputs

Study Protocol: Evaluating artificial intelligence-driven stress echocardiography analysis system (EASE study): mixed method study.
Mahdavi, M., Thomas, N., Flood, C., Stewart-Lord, A., Baillie, L., Grisan, E., Callaghan, P., Panayotova, R, Hothi, S, Griffith, V., Jayadev, S. and Frings, D. Study Protocol: Evaluating artificial intelligence-driven stress echocardiography analysis system (EASE study): mixed method study. BMJ Open.
A pragmatic trial of an Artificial intelligence DRiven appOInTment maNagEment SyStem (ADROITNESS) in NHS outpatient departments: WP3 REPORT
Thomas, N., Frings, D., Flood, C., Grisan, E., Wood, K., Daly, N. and Sharma, S. (2024). A pragmatic trial of an Artificial intelligence DRiven appOInTment maNagEment SyStem (ADROITNESS) in NHS outpatient departments: WP3 REPORT. London South Bank University.
Economic evaluation of a trial exploring the effects of a web-based support tool for parents of children with Juvenile Idiopathic Arthritis.
Flood, C., Hirani, S.P., Mulligan, K., Taylor, J., Harris, S., Wedderburn, S.R. and Newman, S.P. (2024). Economic evaluation of a trial exploring the effects of a web-based support tool for parents of children with Juvenile Idiopathic Arthritis. Rheumatology. https://doi.org/10.1093/rheumatology/keae188
A pragmatic trial of an Artificial intelligence DRiven appOInTment maNagEment SyStem (ADROITNESS) in NHS outpatient departments: WP1 Accuracy - Phase 2b Evaluation Report
Thomas, N., Frings, D., Flood, C., Grisan, E., Wood, K., Daly, N. and Sharma, S. (2023). A pragmatic trial of an Artificial intelligence DRiven appOInTment maNagEment SyStem (ADROITNESS) in NHS outpatient departments: WP1 Accuracy - Phase 2b Evaluation Report. London South Bank University.
A pragmatic trial of an Artificial intelligence DRiven appOInTment maNagEment SyStem (ADROITNESS) in NHS outpatient departments: WP1 Accuracy - Phase 2A Evaluation Report
Thomas, N., Frings, D., Flood, C., Grisan, E., Wood, K., Daly, N. and Sharma, S. (2023). A pragmatic trial of an Artificial intelligence DRiven appOInTment maNagEment SyStem (ADROITNESS) in NHS outpatient departments: WP1 Accuracy - Phase 2A Evaluation Report. London South Bank University.
HIDVA Final Report
Havard, T., Magill, C. and Flood, C. (2023). HIDVA Final Report. London South Bank University.
Evaluation of the Kent Serious Youth Violence Project
Havard, T., Magill. C., Flood, C., Harvey, D., Shepherd, B., Miller, E. and Whittaker, A. (2023). Evaluation of the Kent Serious Youth Violence Project.
A pragmatic trial of an Artificial intelligence DRiven appOInTment maNagEment SyStem (ADROITNESS) in NHS outpatient departments
Thomas, N., Frings, D., Flood, C., Grisan, E., Wood, K., Daly, N. and Sharma, S. (2022). A pragmatic trial of an Artificial intelligence DRiven appOInTment maNagEment SyStem (ADROITNESS) in NHS outpatient departments. London South Bank University.
A pragmatic trial of an Artificial intelligence DRiven appOInTment maNagEment SyStem (ADROITNESS) in NHS outpatient departments: WP1 Accuracy - Phase 1 Evaluation Report
Thomas, N., Frings, D., Flood, C., Grisan, E., Wood, K., Daly, N. and Sharma, S. (2022). A pragmatic trial of an Artificial intelligence DRiven appOInTment maNagEment SyStem (ADROITNESS) in NHS outpatient departments: WP1 Accuracy - Phase 1 Evaluation Report. London South Bank University.
A patient-initiated treatment model for blepharospasm and hemifacial spasm: a randomized controlled trial
Lawes‑Wickwar, S., McBain, H., Brini, H., Hirani, S.P., Hurt, C.H., Flood, C., Dunlop, N., Solly, D., Crampton, B., Newman, S.P. and Ezra, D.G. (2022). A patient-initiated treatment model for blepharospasm and hemifacial spasm: a randomized controlled trial. BMC Neurology. https://doi.org/10.1186/s12883-022-02603-7
A pilot economic evaluation of a feasibility trial for SUpporting wellbeing through PEeR Befriending (SUPERB) for post stroke aphasi
Flood, C., Behn, N., Marshall, J., Simpson, A., Northcott, S., Thomas, S., Goldsmith, K., McVicker, S., Jofre-Bonet, M. and Hilari, K. (2022). A pilot economic evaluation of a feasibility trial for SUpporting wellbeing through PEeR Befriending (SUPERB) for post stroke aphasi. Clinical Rehabilitation. https://doi.org/10.1177/02692155211063554
SUpporting wellbeing through PEeR-Befriending (SUPERB) feasibility trial: fidelity of peer-befriending for people with aphasia.
Behn N, Moss B, McVicker S, Roper A, Northcott S, Marshall J, Thomas S, Simpson A, Flood C, James K, Goldsmith K and Hilari K (2021). SUpporting wellbeing through PEeR-Befriending (SUPERB) feasibility trial: fidelity of peer-befriending for people with aphasia. BMJ Open. 11. https://doi.org/10.1136/bmjopen-2020-047994
“Loneliness can also kill:” a qualitative exploration of outcomes and experiences of the SUPERB peer-befriending scheme for people with aphasia and their significant others
Moss, B., Behn, N., Northcott, S., Monnelly, K., Marshall, J., Simpson, A., Thomas, S., McVicker, S., Goldsmith, K., Flood, C. and Hilari, K. (2021). “Loneliness can also kill:” a qualitative exploration of outcomes and experiences of the SUPERB peer-befriending scheme for people with aphasia and their significant others. Disability and Rehabilitation. 44 (18), pp. 5015-5024. https://doi.org/10.1080/09638288.2021.1922519
“For them and for me”: a qualitative exploration of peer befrienders’ experiences supporting people with aphasia in the SUPERB feasibility trial
Northcott, S., Behn, N., Monnelly, K., Moss, B., Marshall, J., Thomas, S., Simpson, A., McVicker, S., Flood, C., Goldsmith, K. and Hilari, K. (2021). “For them and for me”: a qualitative exploration of peer befrienders’ experiences supporting people with aphasia in the SUPERB feasibility trial. Disability and Rehabilitation. 44 (18), pp. 5025-5037. https://doi.org/10.1080/09638288.2021.1922520
‘Emotion is of the essence. … Number one priority’: A nested qualitative study exploring psychosocial adjustment to stroke and aphasia
Moss, B., Northcott, S., Behn, N., Monnelly, K., Marshall, J., Thomas, S., Simpson, A., Goldsmith, K., McVicker, S., Flood, C. and Hilari, K. (2021). ‘Emotion is of the essence. … Number one priority’: A nested qualitative study exploring psychosocial adjustment to stroke and aphasia. International Journal of Language & Communication Disorders. 56 (3), pp. 594-608. https://doi.org/10.1111/1460-6984.12616
Supporting wellbeing through peer-befriending (SUPERB) for people with aphasia: A feasibility randomised controlled trial
Hilari, K., Behn, N., James, K., Northcott, S., Marshall, J., Thomas, S., Simpson, A., Moss, B., Flood, C., McVicker, S. and Goldsmith, K. (2021). Supporting wellbeing through peer-befriending (SUPERB) for people with aphasia: A feasibility randomised controlled trial. Clinical Rehabilitation. 35 (8), pp. 1151-1163. https://doi.org/10.1177/0269215521995671
Psychosocial support for families of children with neurodisability who have or are considering a gastrostomy: the G-PATH mixed-methods study
Craig G.M., Hajdukova E.B., Harding C., Flood, C., McCourt C, Sellers D., Townsend, J., Moss, D., Tuffrey, C., Donaldson, B., Cole, M. and Gill, A. Psychosocial support for families of children with neurodisability who have or are considering a gastrostomy: the G-PATH mixed-methods study. United Kingdom The National Institute for Health Research (NIHR) . https://doi.org/https://doi.org/10.3310/hsdr08380
Is Individualism Suicidogenic? Findings From a Multinational Study of Young Adults From 12 Countries
Eskin, M., Tran, U.S., Carta, M.G., Poyrazli, S., Flood, C., Mechri, A., Shaheen, A., Janghorbani, M., Khader, Y., Yoshimasu, K., Sun, J.M., Kujan, O., Abuidhail, J., Aidoudi, K., Bakhshi, S., Harlak, H., Moro, M.F., Phillips, L., Hamdan, M., Abuderman, A., Tsuno, K. and Voracek, M. (2020). Is Individualism Suicidogenic? Findings From a Multinational Study of Young Adults From 12 Countries. Frontiers in Psychiatry. 11 (259). https://doi.org/10.3389/fpsyt.2020.00259
Antipsychotic medication side effects knowledge amongst registered mental health nurses in England: A national survey
Begum, F, Mutsatsa, S, Gul, N, Thomas, B and Flood, C (2020). Antipsychotic medication side effects knowledge amongst registered mental health nurses in England: A national survey. Journal of psychiatric and mental health nursing. 27 (5), pp. 521-532. https://doi.org/10.1111/jpm.12600
A patient-initiated DMARD self-monitoring service for people with rheumatoid or psoriatic arthritis: a cost-effectiveness analysis.
McBain, H., Flood, C., Shipley, M., Olaleye, A., Moore, S. and Newman, S. (2020). A patient-initiated DMARD self-monitoring service for people with rheumatoid or psoriatic arthritis: a cost-effectiveness analysis. Rheumatology. 30 (1), pp. 277-287. https://doi.org/10.1093/rheumatology/keaa309
Effect of joint crisis plans on use of compulsory treatment in psychiatry: Single blind randomised controlled trial
Henderson, C, Flood, C, Leese, M, Thornicroft, G, Sutherby, K and Szmukler, G (2004). Effect of joint crisis plans on use of compulsory treatment in psychiatry: Single blind randomised controlled trial. British Medical Journal. 329 (7458), pp. 136-138. https://doi.org/10.1136/bmj.38155.585046.63
Joint crisis plans for people with psychosis: Economic evaluation of a randomised controlled trial
Flood, C, Byford, S, Henderson, C, Leese, M, Thornicroft, G, Sutherby, K and Szmukler, G (2006). Joint crisis plans for people with psychosis: Economic evaluation of a randomised controlled trial. British Medical Journal. 333 (7571), pp. 729-732. https://doi.org/10.1136/bmj.38929.653704.55
Self-management interventions for type 2 diabetes in adult people with severe mental illness (Protocol)
McBain, HB, Mulligan, K, Haddad, M, Flood, C, Jones, JC and Simpson, A (2014). Self-management interventions for type 2 diabetes in adult people with severe mental illness (Protocol). Cochrane Library. 2014 (11). https://doi.org/10.1002/14651858.CD011361
A replication study of the City nurse intervention: reducing conflict and containment on three acute psychiatric wards
Bowers, L, Flood, C, Brennan, G and Allan, T (2008). A replication study of the City nurse intervention: reducing conflict and containment on three acute psychiatric wards. Journal of psychiatric and mental health nursing. 15 (9), pp. 737-742. https://doi.org/10.1111/j.1365-2850.2008.01294.x
Is knowledge and practice safer in England after the release of national guidance on the resuscitation of patients in mental health and learning disabilities?
Flood, C, Gull, N, Thomas, B, Gordon, V and Cleary, K (2013). Is knowledge and practice safer in England after the release of national guidance on the resuscitation of patients in mental health and learning disabilities? Journal of psychiatric and mental health nursing. 21 (9), pp. 806-813. https://doi.org/10.1111/jpm.12126
Results of a pilot randomised controlled trial to measure the clinical and cost effectiveness of peer support in increasing hope and quality of life in mental health patients discharged from hospital in the UK.
Simpson, A, Flood, C, Rowe, J, Quigley, J, Henry, S, Hall, C, Evans, R, Sherman, P and Bowers, L (2014). Results of a pilot randomised controlled trial to measure the clinical and cost effectiveness of peer support in increasing hope and quality of life in mental health patients discharged from hospital in the UK. BMC Psychiatry. 14 (30), p. 30. https://doi.org/10.1186/1471-244X-14-30
Reducing risk of overdose with midazolam injection in adults: an evaluation of change in clinical practice to improve patient safety in England
Flood, C, Matthew, L, Marsh, R, Patel, B, Mansaray, M and Lamont, T (2014). Reducing risk of overdose with midazolam injection in adults: an evaluation of change in clinical practice to improve patient safety in England. Journal of Evaluation in Clinical Practice. 21 (1), pp. 57-66. https://doi.org/10.1111/jep.12228
Diabetes self-management in people with severe mental illness
McBain, HB, Mulligan, K, Haddad, M, Flood, C, Jones, J, Chapman, J, Hilton, N and Simpson, A (2014). Diabetes self-management in people with severe mental illness. The European Health Psychologist. 16 (6), pp. 240-248.
Adjustment with aphasia after stroke: study protocol for a pilot feasibility randomised controlled trial for SUpporting wellbeing through PEeR Befriending (SUPERB)
Hilari, K, Behn, N, Marshall, J, Simpson, A, Thomas, S, Northcott, S, Flood, C, McVicker, S, Jofre-Bonet, M, Moss, B, James, K and Goldsmith, K (2019). Adjustment with aphasia after stroke: study protocol for a pilot feasibility randomised controlled trial for SUpporting wellbeing through PEeR Befriending (SUPERB). Pilot and Feasibility Studies. 5, p. 14. https://doi.org/10.1186/s40814-019-0397-6
The Role of Religion on Suicidal Behavior, Attitudes and Psychological Distress in University Students: A Multinational Study
Eskin, M, Poyrazli, S, Janghorbani, M, Carta, M G, Tran, US, Mechri, A, Hamdan, M, Nawafleh, H, Sun, J-M, Flood, C, Yoshimasu, K, Kujan, O, Aidoudi, K, Bakhshi, S, Harlak, H, Moro, MF, Khader, Y, Phillips, L, Shaheen, A, Taifour, S, Tsuno, K and Voracek, M (2019). The Role of Religion on Suicidal Behavior, Attitudes and Psychological Distress in University Students: A Multinational Study. Transcultural Psychiatry. 59 (5), pp. 853-877. https://doi.org/10.1177/1363461518823933
SOlution Focused brief therapy In post-stroke Aphasia (SOFIA Trial): protocol for a feasibility randomised controlled trial
Northcott, S, Simpson, A, Thomas, S, Hirani, SP, Flood, C and Hilari, K (2019). SOlution Focused brief therapy In post-stroke Aphasia (SOFIA Trial): protocol for a feasibility randomised controlled trial. AMRC Open Research.
Midazolam use for dental conscious sedation: how safe are we?
Shehbi, Z, Flood, C and Matthews, L (2018). Midazolam use for dental conscious sedation: how safe are we? British Dental Journal. 224 (2), pp. 98-104. https://doi.org/10.1038/sj.bdj.2017.1042
Management of type 2 diabetes mellitus in people with severe mental illness: an online cross-sectional survey of healthcare professionals
McBain, HB, Lamontagne-Godwin, F, Haddad, M, Simpson, A, Chapman, J, Jones, J, Flood, C and Mulligan, K (2018). Management of type 2 diabetes mellitus in people with severe mental illness: an online cross-sectional survey of healthcare professionals. BMJ Open. 8 (2), pp. e019400-e019400. https://doi.org/10.1136/bmjopen-2017-019400
Nursing students’ attitudes to suicide and suicidal persons: A cross-national and cultural comparison between Turkey and the United Kingdom
Flood, C, Yilmaz, M, Phillips, L, Lindsay, T, Eskin, M, Hiley, J and Tasdelen, B (2018). Nursing students’ attitudes to suicide and suicidal persons: A cross-national and cultural comparison between Turkey and the United Kingdom. Journal of psychiatric and mental health nursing. 25 (7), pp. 369-379. https://doi.org/10.1111/jpm.12461
Barriers to effective diabetes management - a survey of people with severe mental illness
Mulligan, K, McBain, HB, Lamontagne-Godwin, F, Chapman, J, Flood, C, Haddad, M, Jones, J and Simpson, A (2018). Barriers to effective diabetes management - a survey of people with severe mental illness. BMC Psychiatry. 18 (1), p. 165. https://doi.org/10.1186/s12888-018-1744-5
Evaluation of expressive writing for postpartum health: A randomized controlled trial
Ayers, S, Crawley, R, Button, S, Thornton, A, Field, A, Flood, C, Lee, S, Eagle, A, Bradley, R, Moore, D, Gyte, G and Smith, H (2018). Evaluation of expressive writing for postpartum health: A randomized controlled trial. Journal of Behavioral Medicine. 41 (5), pp. 614-626. https://doi.org/10.1007/s10865-018-9970-3
Barriers and enablers of type 2 diabetes self-management in people with severe mental illness
Mulligan, K, McBain, HB, Lamontagne-Godwin, F, Chapman, J, Haddad, M, Jones, J, Flood, C, Thomas, D and Simpson, A (2017). Barriers and enablers of type 2 diabetes self-management in people with severe mental illness. Health Expectations. 20 (5), pp. 1020-1030. https://doi.org/10.1111/hex.12543
Suicidal Behavior and Psychological Distress in University Students: A 12-Nation Study. Archives of Suicide Research
Eskin, M, Voracek, M, Tran, T, Sun, J, Janghorbani, M, Carta, M G, Moro, M F, Yoshimasu, K, Tsuno, K, Khader, Y, Idhail, J, Nawafleh, H, Hamdan, M, Shaheen, A, Kujan, O, Mechri, A, Flood, C, Phillips, L, Poyrazi, S and Harlak, H (2016). Suicidal Behavior and Psychological Distress in University Students: A 12-Nation Study. Archives of Suicide Research. Archives of Suicide Research. 20 (3), pp. 369-388. https://doi.org/10.1080/13811118.2015.1054055
Effectiveness and cost-effectiveness of a patient-initiated botulinum toxin treatment model for blepharospasm and hemifacial spasm: a study protocol for a randomised controlled trial
Wickwar, S, McBain, HB, Newman, SP, Hirani, SP, Dunlop, N, Flood, C, Hurt, CS and Ezra, DG (2016). Effectiveness and cost-effectiveness of a patient-initiated botulinum toxin treatment model for blepharospasm and hemifacial spasm: a study protocol for a randomised controlled trial. Trials. 17, p. 129. https://doi.org/10.1186/s13063-016-1263-y
Self management interventions for type 2 diabetes in adult people with severe mental illness
McBain, HB, Mulligan, K, Haddad, M, Flood, C, Jones, JC and Simpson, A (2016). Self management interventions for type 2 diabetes in adult people with severe mental illness. Cochrane Database of Systematic Reviews. 2016 (4), p. CD011361. https://doi.org/10.1002/14651858.CD011361.pub2
Severe mental illness and type 2 diabetes: using theory and research evidence to develop complex behaviour change interventions
Jones, J, McBain, HB, Lamontagne-Godwin, F, Mulligan, K, Haddad, M, Flood, C, Thomas, D and Simpson, A (2016). Severe mental illness and type 2 diabetes: using theory and research evidence to develop complex behaviour change interventions. Journal of psychiatric and mental health nursing. 23 (5), pp. 312-321. https://doi.org/10.1111/jpm.12311
The effect of alcohol dependence on automatic visuo-spatial perspective taking
Cox, S, Chandler, C, Simpson, A and Riggs, K (2016). The effect of alcohol dependence on automatic visuo-spatial perspective taking. Drug and Alcohol Dependence. 166, pp. 21-25. https://doi.org/10.1016/j.drugalcdep.2016.06.007
Implementation of recommended type 2 diabetes care for people with severe mental illness - a qualitative exploration with healthcare professionals
McBain, HB, Mulligan, K, Lamontagne-Godwin, F, Jones, J, Haddad, M, Flood, C, Thomas, D and Simpson, A (2016). Implementation of recommended type 2 diabetes care for people with severe mental illness - a qualitative exploration with healthcare professionals. BMC Psychiatry. 16 (1), pp. 222-.222. https://doi.org/10.1186/s12888-016-0942-2
Erratum to: ’Effectiveness and cost-effectiveness of a patient-initiated botulinum toxin treatment model for blepharospasm and hemifacial spasm compared to standard care: study protocol for a randomised controlled trial’.
Wickwar, S, McBain, HB, Newman, SP, Hirani, SP, Hurt, CS, Dunlop, N, Flood, C and Ezra, DG (2016). Erratum to: ’Effectiveness and cost-effectiveness of a patient-initiated botulinum toxin treatment model for blepharospasm and hemifacial spasm compared to standard care: study protocol for a randomised controlled trial’. Trials. 17 (1), pp. 333-333. https://doi.org/10.1186/s13063-016-1263-y
Cross - national comparisons of attitudes towards suicide and suicidal persons in university students from 12 countries
Eskin, M, Kujan, O, Voracek, M, Shaheen, A, Carta, MG, Sun, J-M, Flood, C, Poyrazli, S, Janghorbani, M, Yoshimasu, K, Mechri, A, Khader, Y, Aidoudi, K, Bakhshi, S, Harlak, H, Ahmead, M, Moro, MF, Nawafleh, H, Phillips, L, Abuderman, A, Tran, US and Tsuno, K (2016). Cross - national comparisons of attitudes towards suicide and suicidal persons in university students from 12 countries. Scandinavian Journal of Psychology. 57 (6), pp. 554-563. https://doi.org/10.1111/sjop.12318