“For them and for me”: a qualitative exploration of peer befrienders’ experiences supporting people with aphasia in the SUPERB feasibility trial

Journal article

Northcott, S., Behn, N., Monnelly, K., Moss, B., Marshall, J., Thomas, S., Simpson, A., McVicker, S., Flood, C., Goldsmith, K. and Hilari, K. (2021). “For them and for me”: a qualitative exploration of peer befrienders’ experiences supporting people with aphasia in the SUPERB feasibility trial. Disability and Rehabilitation. 44 (18), pp. 5025-5037. https://doi.org/10.1080/09638288.2021.1922520
AuthorsNorthcott, S., Behn, N., Monnelly, K., Moss, B., Marshall, J., Thomas, S., Simpson, A., McVicker, S., Flood, C., Goldsmith, K. and Hilari, K.
AbstractPeer-befriending, where support is offered by someone with shared lived experience, is an intervention that may facilitate successful adjustment in people experiencing post-stroke aphasia. This paper explores the experiences of the peer-befrienders. People with aphasia were recruited as peer-befrienders within the SUPERB trial investigating befriending for people with post-stroke aphasia. The intervention comprised six visits over three months. Peer-befrienders were matched with at least one befriendee and received training and ongoing supervision. They were invited to participate in in-depth interviews which were analysed using framework analysis. All 10 befrienders participated in interviews, reporting on 19 matches. Seven main themes emerged: content of the sessions; befriender-befriendee relationship; negotiating the visits; handling boundaries and endings; positive impact of the befriending for befrienders and befriendees; and beliefs about the nature and value of peer support. While befrienders described challenges, such as negotiating journeys and witnessing distress, the role was perceived as a "secure challenge" due to the support and training received. Befrienders perceived the role as enjoyable and rewarding, and felt they were making a positive difference. They were unanimous in believing that people with aphasia can offer unique and valuable support to others with aphasia. ClinicalTrials.gov identifier NCT02947776, registered 28th October 2016.Implications for rehabilitationPeople with lived experience of stroke and aphasia were able to offer emotional and social peer support to others with aphasia within the SUPERB trial.Although there were challenges, peer befrienders perceived the role as rewarding and satisfying.Peer befrienders valued the training and ongoing supervision and support they received to deliver the intervention.It is recommended that rehabilitation professionals considering offering peer-befriending schemes provide training and ongoing supervision to support peer-befrienders fulfil their role, as well as practical support with, e.g., arranging visits.
KeywordsRehabilitation
Year2021
JournalDisability and Rehabilitation
Journal citation44 (18), pp. 5025-5037
PublisherInforma UK Limited
ISSN0963-8288
1464-5165
Digital Object Identifier (DOI)https://doi.org/10.1080/09638288.2021.1922520
Funder/ClientStroke Association
The Stroke Association, Psychological Consequences of Stroke – Priority Programme Award
Publication dates
Online23 May 2021
Publication process dates
Accepted23 Apr 2021
Deposited07 Jun 2021
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Open
Licensehttp://creativecommons.org/licenses/by-nc-nd/4.0/
Page range1-13
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