The experiential impact of hospitalisation: Parent's accounts of caring for young people with early psychosis

Journal article


Hickman, G, Newton, EJ, Fenton, K, Thompson, J, Boden, Z and Larkin, M (2015). The experiential impact of hospitalisation: Parent's accounts of caring for young people with early psychosis. Clinical Child Psychology and Psychiatry. 21 (1), pp. 145-155.
AuthorsHickman, G, Newton, EJ, Fenton, K, Thompson, J, Boden, Z and Larkin, M
Abstract

This research examines the experiential impact of hospitalisation on the parents of young people with early psychosis. In-depth interviews were conducted with a small sample of parents, and the resulting transcripts were analysed using Interpretative Phenomenological Analysis. Five themes emerged from the data: Accepting and blaming, Feeling out of control, Hospitalisation as temporary containment, Feeling let down by services and Stigma. Aspects of the hospitalisation process were characterised by parents as generally negative, but a number of positive affirmations were also offered regarding the containing, supportive and crucial role of services. Parents’ perceptions of hospitalisation as a difficult, and sometimes distressing, experience are exacerbated by the complexity of being the carer of a young person. Negotiating services and boundaries within the context of this relationship contributes to feelings of exclusion and disregard by professionals and services. The implications of this study resonate with the current government mental health strategy with regard to how services can engage and include carers in the mental health system, and equip and enable them to support their relatives with early psychosis.

KeywordsHumans; Hospitalization; Parents; Psychotic Disorders; Mental Health Services; Adolescent; Caregivers; Female; Male; Social Stigma; Early intervention; Interpretative Phenomenological Analysis; early psychosis; family caregiver experiences; first episode psychosis; hospitalisation; qualitative; sectioning; Adolescent; Caregivers; Female; Hospitalization; Humans; Male; Mental Health Services; Parents; Psychotic Disorders; Social Stigma; MD Multidisciplinary; Developmental & Child Psychology
Year2015
JournalClinical Child Psychology and Psychiatry
Journal citation21 (1), pp. 145-155
PublisherSAGE Publications
ISSN1461-7021
Digital Object Identifier (DOI)doi:10.1177/1359104515581716
Publication dates
Print29 Apr 2015
Publication process dates
Deposited04 Jul 2017
Accepted01 Mar 2015
Accepted author manuscript
License
CC BY 4.0
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https://openresearch.lsbu.ac.uk/item/876wv

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