The experiential impact of hospitalisation: Parent's accounts of caring for young people with early psychosis

Journal article


Hickman, G, Newton, EJ, Fenton, K, Thompson, J, Boden, Z and Larkin, M (2015). The experiential impact of hospitalisation: Parent's accounts of caring for young people with early psychosis. Clinical Child Psychology and Psychiatry. 21 (1), pp. 145-155. https://doi.org/10.1177/1359104515581716
AuthorsHickman, G, Newton, EJ, Fenton, K, Thompson, J, Boden, Z and Larkin, M
Abstract

This research examines the experiential impact of hospitalisation on the parents of young people with early psychosis. In-depth interviews were conducted with a small sample of parents, and the resulting transcripts were analysed using Interpretative Phenomenological Analysis. Five themes emerged from the data: Accepting and blaming, Feeling out of control, Hospitalisation as temporary containment, Feeling let down by services and Stigma. Aspects of the hospitalisation process were characterised by parents as generally negative, but a number of positive affirmations were also offered regarding the containing, supportive and crucial role of services. Parents’ perceptions of hospitalisation as a difficult, and sometimes distressing, experience are exacerbated by the complexity of being the carer of a young person. Negotiating services and boundaries within the context of this relationship contributes to feelings of exclusion and disregard by professionals and services. The implications of this study resonate with the current government mental health strategy with regard to how services can engage and include carers in the mental health system, and equip and enable them to support their relatives with early psychosis.

KeywordsHumans; Hospitalization; Parents; Psychotic Disorders; Mental Health Services; Adolescent; Caregivers; Female; Male; Social Stigma; Early intervention; Interpretative Phenomenological Analysis; early psychosis; family caregiver experiences; first episode psychosis; hospitalisation; qualitative; sectioning; Adolescent; Caregivers; Female; Hospitalization; Humans; Male; Mental Health Services; Parents; Psychotic Disorders; Social Stigma; MD Multidisciplinary; Developmental & Child Psychology
Year2015
JournalClinical Child Psychology and Psychiatry
Journal citation21 (1), pp. 145-155
PublisherSage
ISSN1461-7021
Digital Object Identifier (DOI)https://doi.org/10.1177/1359104515581716
Publication dates
Print29 Apr 2015
Publication process dates
Deposited04 Jul 2017
Accepted01 Mar 2015
Accepted author manuscript
License
Permalink -

https://openresearch.lsbu.ac.uk/item/876wv

  • 84
    total views
  • 330
    total downloads
  • 3
    views this month
  • 5
    downloads this month

Export as

Related outputs

Comparison of Real-world Data with Simulated Results to Enhance Building Thermal Retention when using Shading Devices
Salehi, B., Andrews, D., Chaer, I., Newton, E. and Gillich, A. (2022). Comparison of Real-world Data with Simulated Results to Enhance Building Thermal Retention when using Shading Devices . CIBSE Technical Symposium 2022. London South Bank University 21 - 22 Apr 2022
Surprising results from a Post Occupancy Evaluation of the way internal roller blinds impact perceptions of visual discomfort
De Grussa, Z., Andrews, D. and Newton, E. (2022). Surprising results from a Post Occupancy Evaluation of the way internal roller blinds impact perceptions of visual discomfort. CIBSE Technical Symposium 2022.
A Circular Economy for the Data Centre Industry: Using Design Methods to Address the Challenge of Whole System Sustainability in a Unique Industrial Sector
Andrews, D., Newton, E., Adibi, N., Chenadec, Julie and Bienge, K. (2021). A Circular Economy for the Data Centre Industry: Using Design Methods to Address the Challenge of Whole System Sustainability in a Unique Industrial Sector. Sustainability. 13 (11), p. e6319. https://doi.org/10.3390/su13116319
Children's verbal, visual and spatial processing and short-term storage abilities: An analysis of verbal comprehension, reading, counting and mathematics
Gordon, R., Smith-Spark, J. H., Newton, E. J. and Henry, L. A. (2021). Children's verbal, visual and spatial processing and short-term storage abilities: An analysis of verbal comprehension, reading, counting and mathematics. Frontiers in Psychology. 12, p. 5671. https://doi.org/10.3389/fpsyg.2021.732182
Improving Thermal Energy Performance of UK Built Environment through the Use of Shading Devices
Salehi, B., Andrews, D., Chaer, I., Newton, E. and Gillich, A. (2021). Improving Thermal Energy Performance of UK Built Environment through the Use of Shading Devices. London Doctoral Academy Postgraduate Research Summer School 2021. London South Bank University 05 - 08 Jul 2021 London South Bank University.
Rethinking and Adapting Approaches to Education for Sustainability to Address Cultural and Behavioural Change and Challenges
Andrews, D, Newton, E. and Lishman, B. (2021). Rethinking and Adapting Approaches to Education for Sustainability to Address Cultural and Behavioural Change and Challenges. 23rd International Conference on Engineering and Product Design Education. on line / Herning Denmark 09 - 10 Sep 2021
Being bad to do good: using reverse psychology to embed Life Cycle Thinking and knowledge of Sustainable Development Goals in design and engineering curricula
Andrews, D., Lishman, B. and Newton, E. (2020). Being bad to do good: using reverse psychology to embed Life Cycle Thinking and knowledge of Sustainable Development Goals in design and engineering curricula . 2nd International Conference on Life Cycle innovation (LCIC 2020). Online 26 - 28 Aug 2020
Working memory and high-level cognition in children: An analysis of timing and accuracy in complex span tasks
Gordon, R., Smith-Spark, J. H., Newton, E. J. and Henry, L. A. (2019). Working memory and high-level cognition in children: An analysis of timing and accuracy in complex span tasks. Journal of Experimental Child Psychology. 191, p. 104736. https://doi.org/10.1016/j.jecp.2019.104736
The experiences of inpatient nursing staff caring for young people with early psychosis
Thompson, J, Boden, Z, Newton, EK, Fenton, K, Hickman, G and Larkin, M (2019). The experiences of inpatient nursing staff caring for young people with early psychosis. Journal of Research in Nursing. 24 (1-2), pp. 75-85. https://doi.org/10.1177/1744987118818857
Encouraging remanufacturing in the retail refrigeration industry
Muranko, Z, Andrews, D, Chaer, I, Newton, EJ and Proudman, P (2019). Encouraging remanufacturing in the retail refrigeration industry. Energy Procedia. 161, pp. 283-291. https://doi.org/10.1016/j.egypro.2019.02.093
A London Residential Retrofit Case Study: Evaluating passive mitigation methods of reducing risk to overheating through the use of solar shading combined with night-time ventilation.
De Grussa, Z, Andrews, D, Lowry, G, Newton, EJ, Yiakoumeti, k, Chalk, A and Bush, D (2019). A London Residential Retrofit Case Study: Evaluating passive mitigation methods of reducing risk to overheating through the use of solar shading combined with night-time ventilation. Building Services Engineering Research and Technology. 40 (4), pp. 389-408. https://doi.org/10.1177/0143624419840768
Circular economy and behaviour change: Using persuasive communication to encourage pro-circular behaviours towards the purchase of remanufactured refrigeration equipment
Muranko, Z., Andrews, D, Chaer, I and Newton, EJ (2019). Circular economy and behaviour change: Using persuasive communication to encourage pro-circular behaviours towards the purchase of remanufactured refrigeration equipment. Journal of Cleaner Production. 222, pp. 499-510. https://doi.org/10.1016/j.jclepro.2019.02.219
Performance Enhancement of Urban Ground Source Heat Pumps through Interactions with Underground Railway Tunnels
Revesz, A, Chaer, I, Thompson, J, Mavroulidou, M, Gunn, M and Maidment, GG (2018). Performance Enhancement of Urban Ground Source Heat Pumps through Interactions with Underground Railway Tunnels. Ashrae Winter Conference. Chicago 22 - 24 Jan 2018 London South Bank University.
Executive function and academic achievement in primary school children: The use of task-related processing speed
Gordon, R, Smith-Spark, JH, Newton, EJ and Henry, LA (2018). Executive function and academic achievement in primary school children: The use of task-related processing speed. Frontiers in Psychology. 9 (APR). https://doi.org/10.3389/fpsyg.2018.00582
The Pro-Circular Change Model (P-CCM)– Proposing A Framework Facilitating Behavioural Change Towards a Circular Economy
Muranko, Z, Andrews, D, Newton, EJ, Chaer, I and Proudman, P (2018). The Pro-Circular Change Model (P-CCM)– Proposing A Framework Facilitating Behavioural Change Towards a Circular Economy. Resources, Conservation and Recycling. 135, pp. 132-140. https://doi.org/10.1016/j.resconrec.2017.12.017
Patient-reported experience measure in sickle cell disease.
Chakravorty, S, Tallett, A, Witwicki, C, Hay, H, Mkandawire, C, Ogundipe, A., Ojeer, P, Whitaker, A, Thompson, J, Sizmur, S, Sathyamoorthy, G and Warner, JO (2018). Patient-reported experience measure in sickle cell disease. Archives of Disease in Childhood. 103, pp. 1104-1109. https://doi.org/10.1136/archdischild-2018-314955
Developing a Circular Economy in the Retail Refrigeration Industry: The Influence of Financial Incentives, Quality Standards and Process Supporting Tools on the Behavioural Intentions to Purchase and Produce Remanufactured Refrigeration Equipment
Muranko, Z, Andrews, D, Chaer, I, Newton, EJ and Proudman, P (2018). Developing a Circular Economy in the Retail Refrigeration Industry: The Influence of Financial Incentives, Quality Standards and Process Supporting Tools on the Behavioural Intentions to Purchase and Produce Remanufactured Refrigeration Equipment. 2nd International Conference on Sustainable Energy and Resource Use in Food Chains (ICSEF 2018). Paphos, Cyprus 17 - 19 Oct 2018
Modelling of Heat Energy Recovery Potential form Underground Railways with Nearby Vertical Ground Heat Exchangers in an Urban Environment
Revesz, A, Chaer, I, Thompson, J, Mavroulidou, M, Gunn, M and Graeme, M (2018). Modelling of Heat Energy Recovery Potential form Underground Railways with Nearby Vertical Ground Heat Exchangers in an Urban Environment. Applied Thermal Engineering. 147, pp. 1059-1069. https://doi.org/10.1016/j.applthermaleng.2018.10.118
On the Brink of Genuinely Collaborative Care: Reflections on the Use of Experience-based Co-design for Translating Qualitative Research into Service Development
Larkin, M, Boden, Z and Newton, EJ (2015). On the Brink of Genuinely Collaborative Care: Reflections on the Use of Experience-based Co-design for Translating Qualitative Research into Service Development. Qualitative Health Research. 25 (11), pp. 1463-1476. https://doi.org/10.1177/1049732315576494
If psychosis were cancer: A speculative comparison.
Larkin, M, Boden, Z and Newton, EJ (2017). If psychosis were cancer: A speculative comparison. Medical Humanities. 43 (2), pp. 118-123.
Incentivising pro-circular behaviours: proposing a new enhanced capital allowance scheme for remanufactured products - the case of refrigerated display cabinets in the United Kingdom
Muranko, Z, Andrews, D, Chaer, I, Newton, EJ, Proudman, P and Longhurst, M (2017). Incentivising pro-circular behaviours: proposing a new enhanced capital allowance scheme for remanufactured products - the case of refrigerated display cabinets in the United Kingdom. Energy Procedia. 123, pp. 369-374. https://doi.org/10.1016/j.egypro.2017.07.271
Pro-circular behaviours and refrigerated display cabinets: supporting resource efficiency in the retail refrigeration sector
Muranko, Z, Andrews, D, Chaer, I, Newton, EJ, Proudman, P and Longhurst, M (2017). Pro-circular behaviours and refrigerated display cabinets: supporting resource efficiency in the retail refrigeration sector. Energy Procedia. 123, pp. 70-75. https://doi.org/10.1016/j.egypro.2017.07.235
A Literature Review Outlining the Importance of Blinds and Shutters as a Sustainable Asset that has the Potential to enhance the Productivity of Occupants in the UK
De Grussa, Z, Andrews, D, Newton, EJ, Lowry, GD, Chalk, A and Bush, D (2016). A Literature Review Outlining the Importance of Blinds and Shutters as a Sustainable Asset that has the Potential to enhance the Productivity of Occupants in the UK. Going North for Sustainability Doctoral Workshop ARCOM / CHOBE. London South Bank University, London 30 Jun 2016 London South Bank University.
Radi(c)al Departures: Comparing Conventional Octolinear Versus Concentric Circles Schematic Maps for the Berlin U-Bahn/S-Bahn Networks Using Objective and Subjective Measures of Effectiveness
Roberts, MJ, Newton, EJ and Canals, M (2016). Radi(c)al Departures: Comparing Conventional Octolinear Versus Concentric Circles Schematic Maps for the Berlin U-Bahn/S-Bahn Networks Using Objective and Subjective Measures of Effectiveness. Information Design Journal. 22 (2), pp. 92-115. https://doi.org/10.1075/idj.22.2.04rob
DEVELOPING CIRCULAR ECONOMY FOR THE RETAIL REFRIGERATION INDUSTRY: HOW FINANCIAL INCENTIVES COULD INFLUENCE REMANUFACTURiNG OF REFRIGERATED DISPLAY CABINETS IN THE UK
Muranko, Z, Andrews, D, Chaer, I, Newton, EJ, Proudman, P and Longhurst, M (2016). DEVELOPING CIRCULAR ECONOMY FOR THE RETAIL REFRIGERATION INDUSTRY: HOW FINANCIAL INCENTIVES COULD INFLUENCE REMANUFACTURiNG OF REFRIGERATED DISPLAY CABINETS IN THE UK. Sustainable Innovation 2016 21st International Conference ‘Circular Economy’ Innovation & Design. University for the Creative Arts Epsom, Surrey, UK 07 - 08 Nov 2016
Ground source heat pumps and their interactions with underground railway tunnels in an urban environment: A review
Revesz, A, Chaer, I, Thompson, J, Mavroulidou, M, Gunn, MJ and Maidment, GG (2015). Ground source heat pumps and their interactions with underground railway tunnels in an urban environment: A review. Applied Thermal Engineering. 93, pp. 147 - 154. https://doi.org/10.1016/j.applthermaleng.2015.09.011