"LEARN"ing what is important to children and young people with intellectual disabilities when they are in hospital

Journal article

Oulton, K, Sell, D and Gibson, F (2018). "LEARN"ing what is important to children and young people with intellectual disabilities when they are in hospital. Journal of Applied Research in Intellectual Disabilities. 31, pp. 792-803. https://doi.org/10.1111/jar.12433
AuthorsOulton, K, Sell, D and Gibson, F
Abstract

© 2018 John Wiley & Sons Ltd. Background: The need to review health service provision for children and young people (CYP) with disabilities and their families in the United Kingdom has been expressed in multiple reports: the most consistent message being that services need to be tailored to meet their individual needs. Our aim was to understand the hospital-related needs and experiences of CYP with intellectual disabilities. Method: An ethnographic study of a neurosciences ward and outpatient department was conducted within a paediatric tertiary hospital setting. Results: Five themes, developed using the acronym LEARN, explained what is important to CYP with intellectual disabilities in hospital: (i) little things make the biggest difference, (ii) eliminate unnecessary waiting, (iii) avoid boredom, (iv) routine and home comforts are key and (v) never assume. Conclusions: It is imperative that the present authors continue to challenge the idea that it is acceptable to exclude CYP with intellectual disabilities from research because of their inability to participate.

Keywords1701 Psychology; 1702 Cognitive Science; 1607 Social Work; Rehabilitation
Year2018
JournalJournal of Applied Research in Intellectual Disabilities
Journal citation31, pp. 792-803
PublisherWiley
ISSN1360-2322
Digital Object Identifier (DOI)https://doi.org/10.1111/jar.12433
Publication dates
Print16 Jan 2018
Publication process dates
Deposited23 May 2018
Accepted01 Jan 2018
Accepted author manuscript
License
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Open
Page range1-12
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