Impact of congenital heart disease on siblings – a review

Journal article

Parker, R, Houghton, S., Bichard, E. and McKeever, S. (2020). Impact of congenital heart disease on siblings – a review. The Journal of Child Health Care. 24 (2), pp. 297-316. https://doi.org/10.1177/1367493520914738

Publication dates
Authors	Parker, R, Houghton, S., Bichard, E. and McKeever, S.
Abstract	Congenital heart disease (CHD) is the most common birth defect. Little is known of the impact of having a sibling with CHD. Available literature documents negative impact of having a sibling with other chronic conditions. This literature review considers empirical evidence investigating the impact of having a sibling with CHD. Twelve databases were searched, and 202 articles retrieved. Eleven articles met the inclusion criteria and were subject to data extraction, quality appraisal, and narrative synthesis. Three themes emerged: changes in normal life, impact on siblings, factors affecting the extent of impact on siblings. Only one intervention study was identified, 5/10 studies were conducted over 20 years ago, and only 4 studies included children as participants. Evidence suggests siblings of children with CHD experience adverse life changes which lead to negative impacts in several domains. Evidence is inconclusive regarding mitigating factors of these impacts. Further research is needed to understand the experiences of being a sibling of a child with CHD.
Keywords	Heart Defects, Congenital; Siblings; Health Impact Assessment; Literature review
Year	2020
Journal	The Journal of Child Health Care
Journal citation	24 (2), pp. 297-316
Publisher	Sage
Digital Object Identifier (DOI)	https://doi.org/10.1177/1367493520914738
Print	01 Jun 2020
Online	27 Mar 2020
Publication process dates
Accepted	05 Feb 2020
Deposited	28 Feb 2020
Accepted author manuscript	MainText_SiblingsCHD_LitRv_120220.docx Title page.docx Figure 1.jpg License CC BY-NC-ND 4.0 File Access Level Open

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	MainText_SiblingsCHD_LitRv_120220.docx
	Title page.docx
	Figure 1.jpg
License: CC BY-NC-ND 4.0
File access level: Open

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