Impact of congenital heart disease on siblings – a review

Journal article


Parker, R, Houghton, S., Bichard, E. and McKeever, S. (2020). Impact of congenital heart disease on siblings – a review. The Journal of Child Health Care. 24 (2), pp. 297-316. https://doi.org/10.1177/1367493520914738
AuthorsParker, R, Houghton, S., Bichard, E. and McKeever, S.
Abstract

Congenital heart disease (CHD) is the most common birth defect. Little is known of the impact of having a sibling with CHD. Available literature documents negative impact of having a sibling with other chronic conditions. This literature review considers empirical evidence investigating the impact of having a sibling with CHD. Twelve databases were searched, and 202 articles retrieved. Eleven articles met the inclusion criteria and were subject to data extraction, quality appraisal, and narrative synthesis. Three themes emerged: changes in normal life, impact on siblings, factors affecting the extent of impact on siblings. Only one intervention study was identified, 5/10 studies were conducted over 20 years ago, and only 4 studies included children as participants. Evidence suggests siblings of children with CHD experience adverse life changes which lead to negative impacts in several domains. Evidence is inconclusive regarding mitigating factors of these impacts. Further research is needed to understand the experiences of being a sibling of a child with CHD.

KeywordsHeart Defects, Congenital; Siblings; Health Impact Assessment; Literature review
Year2020
JournalThe Journal of Child Health Care
Journal citation24 (2), pp. 297-316
PublisherSage
Digital Object Identifier (DOI)https://doi.org/10.1177/1367493520914738
Publication dates
Print01 Jun 2020
Online27 Mar 2020
Publication process dates
Accepted05 Feb 2020
Deposited28 Feb 2020
Accepted author manuscript
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Open
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https://openresearch.lsbu.ac.uk/item/89264

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