On the Brink of Genuinely Collaborative Care: Reflections on the Use of Experience-based Co-design for Translating Qualitative Research into Service Development

Journal article


Larkin, M, Boden, Z and Newton, EJ (2015). On the Brink of Genuinely Collaborative Care: Reflections on the Use of Experience-based Co-design for Translating Qualitative Research into Service Development. Qualitative Health Research. 25 (11), pp. 1463-1476. https://doi.org/10.1177/1049732315576494
AuthorsLarkin, M, Boden, Z and Newton, EJ
Abstract

Inpatient mental health services in the United Kingdom are currently dissatisfactory for service-users and staff. For young people with psychosis, being hospitalized is often distressing, and can lead to disengagement with mental health services. This article describes how we took three qualitative research studies about hospitalization in early psychosis (exploring the perspectives of service-users, parents, and staff) and translated them into service improvements developed in collaboration with a range of stakeholders, including service-users, carers, community and inpatient staff, and management. We used an adapted form of experience-based co-design (EBCD), a participatory action-research method for collaboratively improving health care services. The use of EBCD is still relatively novel in mental health settings, and we discuss how we adapted the methodology, and some of the implications of using EBCD with vulnerable populations in complex services. We reflect on both the disappointments and successes and give some recommendations for future research and methodological development

KeywordsHumans; Attitude of Health Personnel; Attitude to Health; Parents; Professional-Family Relations; Professional-Patient Relations; Psychotic Disorders; Mental Health Services; Qualitative Research; Adolescent; Nursing Staff, Hospital; Inpatients; Health Services Research; State Medicine; Young Adult; United Kingdom; early psychosis; health care, acute / critical; health care, users’ experiences; health care, work environment; lived experience; mental health and illness; mental health nursing; research, action; research, collaborative; young adults; Adolescent; Attitude of Health Personnel; Attitude to Health; Health Services Research; Humans; Inpatients; Mental Health Services; Nursing Staff, Hospital; Parents; Professional-Family Relations; Professional-Patient Relations; Psychotic Disorders; Qualitative Research; State Medicine; United Kingdom; Young Adult
Year2015
JournalQualitative Health Research
Journal citation25 (11), pp. 1463-1476
PublisherSAGE Publications
ISSN1552-7557
Digital Object Identifier (DOI)https://doi.org/10.1177/1049732315576494
Publication dates
Print31 Mar 2015
Publication process dates
Deposited14 Dec 2017
Accepted27 Feb 2015
Accepted author manuscript
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